batten disease family association

The charity supports children and young people and people with disabilities. Batten Disease Family Association is a registered charity whose purpose is education and training. It delivers its work by providing services. The charity is based in West Yorkshire and operates in England And Wales, Scotland, and Northern Ireland.

This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease

Fundraising

See where Batten Disease Family Association is active and find local fundraising opportunities.

Region

England And Wales

Country

Scotland Northern Ireland

Financial Information

Latest Income

£438,139

Latest Expenditure

£419,965

Financial Efficiency

Program Ratio 94.0%

% of income going directly to charitable activities

Overall Efficiency 84.5%

% of expenditure going to programs (vs overhead)

Administrative Ratio 15.7%

Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £449,179

Charitable Activities £0

Other Trading £1,830

Investments £3,016

Other Income £86,114

Expenditure Categories

Charitable Expenditure £507,897

Raising Funds £93,476

Governance £1,003

Grants to Institutions £0

Other Expenditure £0

Financial Trend

Annual Returns

Financial Year	Income	Expenditure	Charitable Spending	Net Assets	Reserves	Staff
2024	£438,139	£419,965				0 / 20
2023	£540,139	£601,373	£507,897	£434,707	£139,075	5 / 12
2022	£545,653	£554,602	£473,284	£495,941	£178,473	5 / 10
2021	£635,015	£308,938	£264,276	£504,890	£174,209	3 / 3
2020	£274,407	£279,174				0 / 1