The British Porphyria Association
Support for people with porphryia and their relatives. Improve understanding of porphryia. Support research into porphryia.
Activities & Mission
Support for people with porphryia and their relatives. Improve understanding of porphryia. Support research into porphryia.
Grants
The British Porphyria Association makes grants as part of its work.
- Gives grants to
- individuals
- Total spending (2026)
- £67,330
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- other defined groups
- What it supports
- education and training and the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2026.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2017 — The Porphyria Charitable Trust (organisation 328647)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2026 | £178,690 | £67,330 | 0 / 25 | |||
| 2025 | £86,063 | £52,609 | 0 / 15 | |||
| 2024 | £38,654 | £44,162 | 0 / 15 | |||
| 2023 | £43,549 | £48,132 | 0 / 5 | |||
| 2022 | £23,062 | £23,111 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The British Porphyria Association
What does The British Porphyria Association do?
Support for people with porphryia and their relatives. Improve understanding of porphryia. Support research into porphryia.
How much income did The British Porphyria Association report in 2026?
The British Porphyria Association reported total income of £179k and reported expenditure of £67k for the financial year ending 2026, based on the most recent annual return filed with the Charity Commission.
When was The British Porphyria Association registered as a charity?
The British Porphyria Association was registered with the Charity Commission for England and Wales on 30 November 2001 as charity number 1089609. It has been registered for 25 years.
Who runs The British Porphyria Association?
The British Porphyria Association is governed by a board of 9 trustees. The chair of trustees is Dr Victoria Anne McGuire. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The British Porphyria Association operate?
The British Porphyria Association operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The British Porphyria Association a registered charity?
Yes — The British Porphyria Association is a registered charity in England and Wales, charity number 1089609.
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Registry Information
Trustees
Also governs 1 other charity
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated