The Smith-Magenis Syndrome (sms) Foundation UK CIO
Also known as: The Smith-Magenis Syndrome (s.m.s.) Foundation UK
We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
Activities & Mission
We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profiles See a sample profileAreas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2021 — The Smith-Magenis Syndrome (s.m.s.) Foundation UK (organisation 3953426)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £190,571 | £193,107 | 0 / 18 | |||
| 2024 | £81,579 | £84,648 | 0 / 8 | |||
| 2023 | £82,983 | £89,727 | 0 / 18 | |||
| 2022 | £105,691 | £135,109 | 0 / 14 | |||
| 2021 | £78,468 | £98,206 | 0 / 19 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Smith-Magenis Syndrome (sms) Foundation UK CIO
What does The Smith-Magenis Syndrome (sms) Foundation UK CIO do?
We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
How much income did The Smith-Magenis Syndrome (sms) Foundation UK CIO report in 2025?
The Smith-Magenis Syndrome (sms) Foundation UK CIO reported total income of £191k and reported expenditure of £193k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Smith-Magenis Syndrome (sms) Foundation UK CIO registered as a charity?
The Smith-Magenis Syndrome (sms) Foundation UK CIO was registered with the Charity Commission for England and Wales on 28 November 2019 as charity number 1186647. It has been registered for 7 years.
Who runs The Smith-Magenis Syndrome (sms) Foundation UK CIO?
The Smith-Magenis Syndrome (sms) Foundation UK CIO is governed by a board of 10 trustees. The chair of trustees is Hazel Wotherspoon. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Smith-Magenis Syndrome (sms) Foundation UK CIO operate?
The Smith-Magenis Syndrome (sms) Foundation UK CIO operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Smith-Magenis Syndrome (sms) Foundation UK CIO a registered charity?
Yes — The Smith-Magenis Syndrome (sms) Foundation UK CIO is a registered charity in England and Wales, charity number 1186647.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profiles See a sample profileDetails
PEWSEY
Wiltshire
SN9 5AF
Registry Information
Trustees
Also Known As
- The Smith-Magenis Syndrome (s.m.s.) Foundation UK
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated