Action Duchenne Limited
Also known as: Parent Project UK Limited
Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.
Activities & Mission
Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Higher than 50% of UK Beneficiary group charities with income £100K to £1M (sample: 3459). How is this calculated?
Higher than 15% of UK Beneficiary group charities with income £100K to £1M. How is this calculated?
Lower overhead than 6% of UK Beneficiary group charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £590,523 | £673,765 | £534,419 | £452,848 | £340,154 | 12 / 10 |
| 2024 | £612,379 | £642,358 | £581,912 | £521,436 | £207,700 | 10 / 14 |
| 2023 | £711,864 | £580,845 | £545,120 | £551,415 | £145,200 | 9 / 18 |
| 2022 | £562,186 | £359,863 | £284,543 | £420,396 | £420,156 | 8 / 125 |
| 2021 | £494,338 | £367,861 | 0 / 122 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Action Duchenne Limited
What does Action Duchenne Limited do?
Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.
How much income did Action Duchenne Limited report in 2025?
Action Duchenne Limited reported total income of £591k and reported expenditure of £674k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
How efficient is Action Duchenne Limited?
Action Duchenne Limited has a program ratio of 90.5%, meaning that share of its income goes directly to charitable activities. This is higher than 50% of UK Beneficiary group charities with income £100K to £1M (sample of 3459 charities). See our methodology for how this is calculated.
When was Action Duchenne Limited registered as a charity?
Action Duchenne Limited was registered with the Charity Commission for England and Wales on 9 February 2004 as charity number 1101971. It has been registered for 22 years.
Who runs Action Duchenne Limited?
Action Duchenne Limited is governed by a board of 5 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Action Duchenne Limited operate?
Action Duchenne Limited operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Action Duchenne Limited a registered charity?
Yes — Action Duchenne Limited is a registered charity in England and Wales, charity number 1101971.
Details
5th Floor, Mariner House
62 Prince Street
BRISTOL
BS1 4QD
Registry Information
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Trustees
Sectors & Classifications
Also Known As
- Parent Project UK Limited
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated