Skip to main content Skip to navigation

action duchenne limited

The charity supports children and young people, people with disabilities, and the general public. Action Duchenne Limited is a registered charity whose purpose is general charitable purposes. It delivers its work by making grants to individuals. The charity is based in Bristol and operates in England And Wales, Scotland, and Northern Ireland.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

Email Charity

Activities & Mission

Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.

Fundraising

See where Action Duchenne Limited is active and find local fundraising opportunities.

Financial Information

Latest Income
£612,379
Latest Expenditure
£642,358

Financial Efficiency

Program Ratio 95.0%
% of income going directly to charitable activities
Overall Efficiency 90.6%
% of expenditure going to programs (vs overhead)
Administrative Ratio 17.9%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £257,546
Charitable Activities £135,819
Other Trading £209,235
Investments £9,779
Other Income £0

Expenditure Categories

Charitable Expenditure £581,912
Raising Funds £60,446
Governance £54,378
Grants to Institutions £21,180
Other Expenditure £0

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£612,379£642,358£581,912£521,436£207,70010 / 14
2023£711,864£580,845£545,120£551,415£145,2009 / 18
2022£562,186£359,863£284,543£420,396£420,1568 / 125
2021£494,338£367,8610 / 122
2020£758,434£781,972£685,441£113,028£113,0286 / 117

Staff column shows: Employees / Volunteers