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Action Duchenne Limited

Also known as: Parent Project UK Limited

Action Duchenne supports, empowers and equips every Duchenne & Becker Muscular Dystrophy community in their journey from diagnosis & beyond. We journey alongside communities to support, empower & advocate for them. We believe that every individual affected by Duchenne & Becker should be able to enjoy the best quality of life possible, and be supported to make informed decisions about their lives.

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Activities & Mission

Action Duchenne supports, empowers and equips every Duchenne & Becker Muscular Dystrophy community in their journey from diagnosis & beyond. We journey alongside communities to support, empower & advocate for them. We believe that every individual affected by Duchenne & Becker should be able to enjoy the best quality of life possible, and be supported to make informed decisions about their lives.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£590,523
Latest Expenditure
£673,765

Financial Efficiency

Program Ratio 90.5%
% of income going directly to charitable activities
Overall Efficiency 79.3%
% of expenditure going to programs (vs overhead)
Administrative Ratio 31.1%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £174,359
Charitable Activities £402,518
Other Trading £4,080
Investments £9,566
Other Income £0

Expenditure Categories

Charitable Expenditure £534,419
Raising Funds £139,346
Governance £70,277
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£590,523
£673,765£534,419£452,848£340,15412 / 10
2024
£612,379
£642,358£581,912£521,436£207,70010 / 14
2023
£711,864
£580,845£545,120£551,415£145,2009 / 18
2022
£562,186
£359,863£284,543£420,396£420,1568 / 125
2021
£494,338
£367,8610 / 122

Staff column shows: Employees / Volunteers

Frequently asked questions about Action Duchenne Limited

What does Action Duchenne Limited do?

Action Duchenne supports, empowers and equips every Duchenne & Becker Muscular Dystrophy community in their journey from diagnosis & beyond. We journey alongside communities to support, empower & advocate for them. We believe that every individual affected by Duchenne & Becker should be able to enjoy the best quality of life possible, and be supported to make informed decisions about their lives.

How much income did Action Duchenne Limited report in 2025?

Action Duchenne Limited reported total income of £591k and reported expenditure of £674k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Action Duchenne Limited registered as a charity?

Action Duchenne Limited was registered with the Charity Commission for England and Wales on 9 February 2004 as charity number 1101971. It has been registered for 22 years.

Who runs Action Duchenne Limited?

Action Duchenne Limited is governed by a board of 5 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Action Duchenne Limited operate?

Action Duchenne Limited operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Action Duchenne Limited a registered charity?

Yes — Action Duchenne Limited is a registered charity in England and Wales, charity number 1101971.

Details

Address
2nd Floor, South
One Castlepark
Tower Hill
BRISTOL
BS2 0JA
Registration Date
9 February 2004
Status
Registered

Registry Information

Organisation Number
4004341
Charity Number
1101971

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Trustees

Anna Mabile
Dr Victoria Pleydell
Emma Rose Simmonds
Greg Hill
Marion Main

Also Known As

  • Parent Project UK Limited

Data & trust

Register data refreshed
30 July 2026
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