Action For Bpan
Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN.
Activities & Mission
Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Show all 16 areas of operation Hide areas of operation
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £118,116 | £18,278 | 0 / 8 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Action For Bpan
What does Action For Bpan do?
Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN.
How much income did Action For Bpan report in 2025?
Action For Bpan reported total income of £118k and reported expenditure of £18k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Action For Bpan registered as a charity?
Action For Bpan was registered with the Charity Commission for England and Wales on 17 October 2024 as charity number 1210529. It has been registered for 2 years.
Who runs Action For Bpan?
Action For Bpan is governed by a board of 4 trustees. The chair of trustees is Kelly Ann Sayers Ms. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Action For Bpan operate?
Action For Bpan operates across 16 areas, including Australia, Canada, France and 13 others. The full list is shown on its profile.
Is Action For Bpan a registered charity?
Yes — Action For Bpan is a registered charity in England and Wales, charity number 1210529.
Details
OLD MILL LANE
BRAY
MAIDENHEAD
SL6 2BG
Registry Information
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Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
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