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Advocacy For Neuroacanthocytosis Patients

Also known as: N a Fund

Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.

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Activities & Mission

Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 10 areas of operation

Financial Information

Latest Income
£50,244
Latest Expenditure
£52,008

Financial Efficiency

Overall Efficiency 103.5%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 103.5%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£50,244
£52,0080 / 0
2022
£90,098
£16,7900 / 1
2021
£15,082
£89,1960 / 1
2020
£182,144
£100,2480 / 1

Staff column shows: Employees / Volunteers

Frequently asked questions about Advocacy For Neuroacanthocytosis Patients

What does Advocacy For Neuroacanthocytosis Patients do?

Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.

How much income did Advocacy For Neuroacanthocytosis Patients report in 2024?

Advocacy For Neuroacanthocytosis Patients reported total income of £50k and reported expenditure of £52k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was Advocacy For Neuroacanthocytosis Patients registered as a charity?

Advocacy For Neuroacanthocytosis Patients was registered with the Charity Commission for England and Wales on 8 December 2009 as charity number 1133182. It has been registered for 17 years.

Who runs Advocacy For Neuroacanthocytosis Patients?

Advocacy For Neuroacanthocytosis Patients is governed by a board of 5 trustees. The chair of trustees is GINGER IRVINE. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Advocacy For Neuroacanthocytosis Patients operate?

Advocacy For Neuroacanthocytosis Patients operates across 10 areas, including France, Germany, Italy and 7 others. The full list is shown on its profile.

Is Advocacy For Neuroacanthocytosis Patients a registered charity?

Yes — Advocacy For Neuroacanthocytosis Patients is a registered charity in England and Wales, charity number 1133182.

Details

Address
Flat 39
Coleherne Court
The Little Boltons
LONDON
SW5 0DN
Registration Date
8 December 2009
Status
Registered

Registry Information

Organisation Number
4047526
Charity Number
1133182

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Trustees

GINGER IRVINE Chair
Also governs 1 other charity
Dr Peter George Mills
Mary Elizabeth Leigh-Wood
Nicola Keat
Professor Dr Adrian Danek

Also Known As

  • N a Fund

Data & trust

Register data refreshed
14 May 2026
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