Bardet-Biedl Syndrome UK (bbs Uk)
Also known as: Bardet-Biedl Syndrome UK, Bbs UK
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
Activities & Mission
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2020 — Bardet - Biedl Syndrome UK (organisation 1027384)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £395,748 | £294,676 | 0 / 10 | |||
| 2024 | £315,787 | £279,165 | 0 / 10 | |||
| 2023 | £242,781 | £250,141 | 0 / 12 | |||
| 2022 | £154,564 | £93,539 | 0 / 10 | |||
| 2020 | £53,704 | £55,174 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Bardet-Biedl Syndrome UK (bbs Uk)
What does Bardet-Biedl Syndrome UK (bbs Uk) do?
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
How much income did Bardet-Biedl Syndrome UK (bbs Uk) report in 2025?
Bardet-Biedl Syndrome UK (bbs Uk) reported total income of £396k and reported expenditure of £295k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Bardet-Biedl Syndrome UK (bbs Uk) registered as a charity?
Bardet-Biedl Syndrome UK (bbs Uk) was registered with the Charity Commission for England and Wales on 18 December 2018 as charity number 1181244. It has been registered for 8 years.
Who runs Bardet-Biedl Syndrome UK (bbs Uk)?
Bardet-Biedl Syndrome UK (bbs Uk) is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Bardet-Biedl Syndrome UK (bbs Uk) operate?
Bardet-Biedl Syndrome UK (bbs Uk) operates in England And Wales, as recorded in its Charity Commission filing.
Is Bardet-Biedl Syndrome UK (bbs Uk) a registered charity?
Yes — Bardet-Biedl Syndrome UK (bbs Uk) is a registered charity in England and Wales, charity number 1181244.
Details
HARWICH
CO12 4UP
Registry Information
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Also Known As
- Bardet-Biedl Syndrome UK
- Bbs UK
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated