Batten Disease Family Association CIO
Also known as: Bdfa
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
Activities & Mission
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2025 — Batten Disease Family Association (organisation 3974269)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £491,462 | £634,269 | 0 / 25 | |||
| 2024 | £0 | £0 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Batten Disease Family Association CIO
What does Batten Disease Family Association CIO do?
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
How much income did Batten Disease Family Association CIO report in 2025?
Batten Disease Family Association CIO reported total income of £491k and reported expenditure of £634k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Batten Disease Family Association CIO registered as a charity?
Batten Disease Family Association CIO was registered with the Charity Commission for England and Wales on 9 November 2023 as charity number 1205650. It has been registered for 3 years.
Who runs Batten Disease Family Association CIO?
Batten Disease Family Association CIO is governed by a board of 7 trustees. The chair of trustees is Nigel Lorenzo Nicholls. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Batten Disease Family Association CIO operate?
Batten Disease Family Association CIO operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Batten Disease Family Association CIO a registered charity?
Yes — Batten Disease Family Association CIO is a registered charity in England and Wales, charity number 1205650.
Details
Baildon
SHIPLEY
West Yorkshire
BD17 6TW
Registry Information
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Also Known As
- Bdfa
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated