Cdkl5 UK
To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
Activities & Mission
To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £60,140 | £29,130 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Cdkl5 UK
What does Cdkl5 UK do?
To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
How much income did Cdkl5 UK report in 2025?
Cdkl5 UK reported total income of £60k and reported expenditure of £29k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Cdkl5 UK registered as a charity?
Cdkl5 UK was registered with the Charity Commission for England and Wales on 18 April 2024 as charity number 1207922. It has been registered for 2 years.
Who runs Cdkl5 UK?
Cdkl5 UK is governed by a board of 9 trustees. The chair of trustees is CAROL-ANNE PARTRIDGE MSc. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Cdkl5 UK operate?
Cdkl5 UK operates across 5 areas, including Isle Of Man, Jersey, Northern Ireland and 2 others. The full list is shown on its profile.
Is Cdkl5 UK a registered charity?
Yes — Cdkl5 UK is a registered charity in England and Wales, charity number 1207922.
Details
Henleaze House
13 Harbury Road
BRISTOL
BS9 4PN
Registry Information
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Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated