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Cdls Foundation UK & Ireland

Also known as: Cornelia De Lange Syndrome Foundation UK, Cd L S Foundation

Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.

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Activities & Mission

Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£53,629
Latest Expenditure
£47,139

Financial Efficiency

Overall Efficiency 87.9%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 87.9%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£53,629
£47,1390 / 0
2024
£49,256
£46,2920 / 0
2023
£61,959
£63,8740 / 0
2022
£51,735
£54,2340 / 0
2021
£45,243
£33,2200 / 4

Staff column shows: Employees / Volunteers

Frequently asked questions about Cdls Foundation UK & Ireland

What does Cdls Foundation UK & Ireland do?

Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.

How much income did Cdls Foundation UK & Ireland report in 2025?

Cdls Foundation UK & Ireland reported total income of £54k and reported expenditure of £47k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Cdls Foundation UK & Ireland registered as a charity?

Cdls Foundation UK & Ireland was registered with the Charity Commission for England and Wales on 25 March 1996 as charity number 1054033. It has been registered for 30 years.

Who runs Cdls Foundation UK & Ireland?

Cdls Foundation UK & Ireland is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Cdls Foundation UK & Ireland operate?

Cdls Foundation UK & Ireland operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Cdls Foundation UK & Ireland a registered charity?

Yes — Cdls Foundation UK & Ireland is a registered charity in England and Wales, charity number 1054033.

Details

Address
C D L S Foundation
PO Box 8368
RIPLEY
DE5 4DA
Registration Date
25 March 1996
Status
Registered

Registry Information

Organisation Number
1054033
Charity Number
1054033

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Trustees

Bjorn Harris
Also governs 1 other charity
CHARLES BLOCKLEY
DAVID AXTELL
Dr Bethany Pang
FAYE KETT
Jack Young
Kim Wildborne
Ryan Saunders
Sara Peaford-Smith

Also Known As

  • Cornelia De Lange Syndrome Foundation UK
  • Cd L S Foundation

Data & trust

Register data refreshed
30 July 2026
Report a data issue