cure eb (formerly known as sohana research fund)
Activities & Mission
SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.
Fundraising
See where Cure Eb (formerly Known As Sohana Research Fund) is active and find local fundraising opportunities.
Region
Country
Financial Information
Latest Income
£4,850,763
Latest Expenditure
£1,410,954
Financial Efficiency
Program Ratio 25.7%
% of income going directly to charitable activities
Overall Efficiency 88.4%
% of expenditure going to programs (vs overhead)
Administrative Ratio 12.3%
Overhead (fundraising + governance) as % of total expenditure
Latest Financial Breakdown
Income Sources
Donations & Legacies £4,807,468
Charitable Activities £0
Other Trading £0
Investments £43,295
Other Income £0
Expenditure Categories
Charitable Expenditure £1,247,666
Raising Funds £163,288
Governance £10,532
Grants to Institutions £1,047,247
Other Expenditure £0
Financial Trend
Annual Returns
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £4,850,763 | £1,410,954 | £1,247,666 | £5,125,552 | £235,377 | 0 / 15 |
| 2023 | £730,918 | £1,552,666 | £1,481,770 | £1,685,743 | £199,920 | 0 / 15 |
| 2022 | £1,000,863 | £1,122,145 | £1,033,130 | £2,507,444 | £2,507,444 | 1 / 10 |
| 2021 | £1,565,380 | £858,839 | £820,811 | £2,628,726 | £2,628,726 | 0 / 10 |
| 2020 | £796,938 | £759,771 | £735,498 | £1,922,185 | £1,824,284 | 0 / 10 |
Staff column shows: Employees / Volunteers
Details
Address
10 HUNTINGDON STREET
LONDON
N1 1BU
LONDON
N1 1BU
Email
contact@cure-eb.orgWebsite
www.cure-eb.orgRegistration Date
25 September 2014
Status
Registered
Registry Information
Organisation Number
5050985
Charity Number
1158672
Trustees
MICHAEL GEORGES DE LATHAUWER
TAZIM HALL
PROFESSOR DAVID KELSELL
JAMES DOUGLAS COLLINS
SHARMILA VIJAYANTHI NIKAPOTA
Duncan Wales
Rachel Lesiter
Sectors & Classifications
Also Known As
- SOHANA RESEARCH FUND
- SRF