Cure Eb (formerly Known As Sohana Research Fund)
Also known as: Sohana Research Fund, Srf
SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.
Activities & Mission
SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2021 — The Phoebe Research Fund (organisation 5063926)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £4,850,763 | £1,410,954 | £1,247,666 | £5,125,552 | £235,377 | 0 / 15 |
| 2023 | £730,918 | £1,552,666 | £1,481,770 | £1,685,743 | £199,920 | 0 / 15 |
| 2022 | £1,000,863 | £1,122,145 | £1,033,130 | £2,507,444 | £2,507,444 | 1 / 10 |
| 2021 | £1,565,380 | £858,839 | £820,811 | £2,628,726 | £2,628,726 | 0 / 10 |
| 2020 | £796,938 | £759,771 | £735,498 | £1,922,185 | £1,824,284 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Cure Eb (formerly Known As Sohana Research Fund)
What does Cure Eb (formerly Known As Sohana Research Fund) do?
SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.
How much income did Cure Eb (formerly Known As Sohana Research Fund) report in 2024?
Cure Eb (formerly Known As Sohana Research Fund) reported total income of £4.85m and reported expenditure of £1.41m for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.
When was Cure Eb (formerly Known As Sohana Research Fund) registered as a charity?
Cure Eb (formerly Known As Sohana Research Fund) was registered with the Charity Commission for England and Wales on 25 September 2014 as charity number 1158672. It has been registered for 12 years.
Who runs Cure Eb (formerly Known As Sohana Research Fund)?
Cure Eb (formerly Known As Sohana Research Fund) is governed by a board of 7 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Cure Eb (formerly Known As Sohana Research Fund) operate?
Cure Eb (formerly Known As Sohana Research Fund) operates across 4 areas: France, Spain, United States and England And Wales.
Is Cure Eb (formerly Known As Sohana Research Fund) a registered charity?
Yes — Cure Eb (formerly Known As Sohana Research Fund) is a registered charity in England and Wales, charity number 1158672.
Details
LONDON
N1 1BU
Registry Information
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Also Known As
- Sohana Research Fund
- Srf
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated