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Cure Eb (formerly Known As Sohana Research Fund)

Also known as: Sohana Research Fund, Srf

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.

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Activities & Mission

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£4,850,763
Latest Expenditure
£1,410,954

Financial Efficiency

Program Ratio 25.7%
% of income going directly to charitable activities

Higher than 6% of UK Charitable activities charities with income £1M to £10M (sample: 1335). How is this calculated?

Overall Efficiency 88.4%
% of expenditure going to programs (vs overhead)

Higher than 25% of UK Charitable activities charities with income £1M to £10M. How is this calculated?

Administrative Ratio 12.3%
Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 23% of UK Charitable activities charities with income £1M to £10M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £4,807,468
Charitable Activities £0
Other Trading £0
Investments £43,295
Other Income £0

Expenditure Categories

Charitable Expenditure £1,247,666
Raising Funds £163,288
Governance £10,532
Grants to Institutions £1,047,247
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

The Commission record shows this related event on the register:

  • Asset transfer in in 2021 — The Phoebe Research Fund (organisation 5063926)
Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£4,850,763
£1,410,954£1,247,666£5,125,552£235,3770 / 15
2023
£730,918
£1,552,666£1,481,770£1,685,743£199,9200 / 15
2022
£1,000,863
£1,122,145£1,033,130£2,507,444£2,507,4441 / 10
2021
£1,565,380
£858,839£820,811£2,628,726£2,628,7260 / 10
2020
£796,938
£759,771£735,498£1,922,185£1,824,2840 / 10

Staff column shows: Employees / Volunteers

Frequently asked questions about Cure Eb (formerly Known As Sohana Research Fund)

What does Cure Eb (formerly Known As Sohana Research Fund) do?

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.

How much income did Cure Eb (formerly Known As Sohana Research Fund) report in 2024?

Cure Eb (formerly Known As Sohana Research Fund) reported total income of £4.85m and reported expenditure of £1.41m for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

How efficient is Cure Eb (formerly Known As Sohana Research Fund)?

Cure Eb (formerly Known As Sohana Research Fund) has a program ratio of 25.7%, meaning that share of its income goes directly to charitable activities. This is higher than 6% of UK Charitable activities charities with income £1M to £10M (sample of 1335 charities). See our methodology for how this is calculated.

When was Cure Eb (formerly Known As Sohana Research Fund) registered as a charity?

Cure Eb (formerly Known As Sohana Research Fund) was registered with the Charity Commission for England and Wales on 25 September 2014 as charity number 1158672. It has been registered for 12 years.

Who runs Cure Eb (formerly Known As Sohana Research Fund)?

Cure Eb (formerly Known As Sohana Research Fund) is governed by a board of 7 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Cure Eb (formerly Known As Sohana Research Fund) operate?

Cure Eb (formerly Known As Sohana Research Fund) operates across 4 areas: France, Spain, United States and England And Wales.

Is Cure Eb (formerly Known As Sohana Research Fund) a registered charity?

Yes — Cure Eb (formerly Known As Sohana Research Fund) is a registered charity in England and Wales, charity number 1158672.

Details

Address
10 HUNTINGDON STREET
LONDON
N1 1BU
Registration Date
25 September 2014
Status
Registered

Registry Information

Organisation Number
5050985
Charity Number
1158672

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Other notable Charitable activities charities

Major UK charities in the same primary sector, drawn from the curated priority cohort.

Trustees

Duncan Wales
JAMES DOUGLAS COLLINS
MICHAEL GEORGES DE LATHAUWER
PROFESSOR DAVID KELSELL
Rachel Lesiter
SHARMILA VIJAYANTHI NIKAPOTA
TAZIM HALL

Sectors & Classifications

Charitable activities Research

Also Known As

  • Sohana Research Fund
  • Srf

Data & trust

Register data refreshed
14 May 2026
Report a data issue