Emily Heather Appeal Fund For Sandhoffs' Disease
Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
Activities & Mission
Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Frequently asked questions about Emily Heather Appeal Fund For Sandhoffs' Disease
What does Emily Heather Appeal Fund For Sandhoffs' Disease do?
Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
When was Emily Heather Appeal Fund For Sandhoffs' Disease registered as a charity?
Emily Heather Appeal Fund For Sandhoffs' Disease was registered with the Charity Commission for England and Wales on 4 October 2011 as charity number 287122. It has been registered for 15 years.
Who runs Emily Heather Appeal Fund For Sandhoffs' Disease?
Emily Heather Appeal Fund For Sandhoffs' Disease is governed by a board of 2 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Emily Heather Appeal Fund For Sandhoffs' Disease operate?
Emily Heather Appeal Fund For Sandhoffs' Disease operates in England And Wales, as recorded in its Charity Commission filing.
Is Emily Heather Appeal Fund For Sandhoffs' Disease a registered charity?
Yes — Emily Heather Appeal Fund For Sandhoffs' Disease is a registered charity in England and Wales, charity number 287122.
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B98 7PN
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