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Haemochromatosis UK

Also known as: The Haemochromatosis Society, Huk

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

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Activities & Mission

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£575,107
Latest Expenditure
£622,646

Financial Efficiency

Program Ratio 108.3%
% of income going directly to charitable activities
Overall Efficiency 100.0%
% of expenditure going to programs (vs overhead)
Administrative Ratio 0.0%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £209,251
Charitable Activities £359,022
Other Trading £0
Investments £6,834
Other Income £0

Expenditure Categories

Charitable Expenditure £622,646
Raising Funds £0
Governance £0
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£575,107
£622,646£622,646£358,402£239,4927 / 150
2023
£423,698
£394,0850 / 40
2022
£436,806
£457,3030 / 40
2021
£366,138
£326,0200 / 20
2020
£317,667
£229,4320 / 40

Staff column shows: Employees / Volunteers

Frequently asked questions about Haemochromatosis UK

What does Haemochromatosis UK do?

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

How much income did Haemochromatosis UK report in 2024?

Haemochromatosis UK reported total income of £575k and reported expenditure of £623k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was Haemochromatosis UK registered as a charity?

Haemochromatosis UK was registered with the Charity Commission for England and Wales on 17 December 1990 as charity number 1001307. It has been registered for 36 years.

Who runs Haemochromatosis UK?

Haemochromatosis UK is governed by a board of 5 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Haemochromatosis UK operate?

Haemochromatosis UK operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Haemochromatosis UK a registered charity?

Yes — Haemochromatosis UK is a registered charity in England and Wales, charity number 1001307.

Details

Address
The Flaxmill
Flaxmill Lane
Pinchbeck
Spalding
Lincolnshire
PE11 3YP
Registration Date
17 December 1990
Status
Registered

Registry Information

Organisation Number
1001307
Charity Number
1001307

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Trustees

Aaron Venables
Also governs 1 other charity
Dieter Krapp
Also governs 1 other charity
Guillaume Fillias
Pippa Randolph
Sarah Vousden

Also Known As

  • The Haemochromatosis Society
  • Haemochromatosis UK
  • Huk

Data & trust

Register data refreshed
30 July 2026
Report a data issue