Mds UK Patient Support Group
Also known as: MDS Support UK
Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.
Activities & Mission
Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2014 — Mds UK Patient Support Group (organisation 4036564)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £254,314 | £308,068 | 0 / 0 | |||
| 2024 | £133,420 | £226,050 | 0 / 10 | |||
| 2023 | £402,047 | £204,117 | 0 / 30 | |||
| 2022 | £420,583 | £107,100 | 0 / 25 | |||
| 2021 | £180,512 | £155,999 | 0 / 25 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Mds UK Patient Support Group
What does Mds UK Patient Support Group do?
Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.
How much income did Mds UK Patient Support Group report in 2025?
Mds UK Patient Support Group reported total income of £254k and reported expenditure of £308k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Mds UK Patient Support Group registered as a charity?
Mds UK Patient Support Group was registered with the Charity Commission for England and Wales on 22 December 2011 as charity number 1145214. It has been registered for 15 years.
Who runs Mds UK Patient Support Group?
Mds UK Patient Support Group is governed by a board of 7 trustees. The chair of trustees is Linda Patricia Holder. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Mds UK Patient Support Group operate?
Mds UK Patient Support Group operates across 2 areas: Northern Ireland and England And Wales.
Is Mds UK Patient Support Group a registered charity?
Yes — Mds UK Patient Support Group is a registered charity in England and Wales, charity number 1145214.
Details
24 Ellerbrook Way
Stokesley Business Park
Stokesley
TS9 5LZ
Registry Information
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Trustees
Sectors & Classifications
Also Known As
- MDS Support UK
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated