Myositis UK
Also known as: Myositis Support Group, The Dermatomyositis and Polymyositis Support Group
To provide up to date information on all forms of MyositisTo help give those affected a better understanding of their illnessTo relieve the isolation felt by the individual when a rare illness is diagnosedTo guide those with the condition in the right direction of treatmentTo raise awareness of the conditionsTo raise funds to promote and fund research
Activities & Mission
To provide up to date information on all forms of MyositisTo help give those affected a better understanding of their illnessTo relieve the isolation felt by the individual when a rare illness is diagnosedTo guide those with the condition in the right direction of treatmentTo raise awareness of the conditionsTo raise funds to promote and fund research
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £140,081 | £75,145 | 0 / 2 | |||
| 2024 | £262,343 | £230,706 | 0 / 2 | |||
| 2023 | £115,653 | £68,810 | 0 / 3 | |||
| 2022 | £85,177 | £18,757 | 0 / 0 | |||
| 2021 | £347,239 | £152,570 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Myositis UK
What does Myositis UK do?
To provide up to date information on all forms of MyositisTo help give those affected a better understanding of their illnessTo relieve the isolation felt by the individual when a rare illness is diagnosedTo guide those with the condition in the right direction of treatmentTo raise awareness of the conditionsTo raise funds to promote and fund research
How much income did Myositis UK report in 2025?
Myositis UK reported total income of £140k and reported expenditure of £75k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Myositis UK registered as a charity?
Myositis UK was registered with the Charity Commission for England and Wales on 26 April 1988 as charity number 327791. It has been registered for 38 years.
Who runs Myositis UK?
Myositis UK is governed by a board of 3 trustees. The chair of trustees is LESLIE CHARLES OAKLEY MBE. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Myositis UK operate?
Myositis UK operates across 2 areas: Northern Ireland and Scotland.
Is Myositis UK a registered charity?
Yes — Myositis UK is a registered charity in England and Wales, charity number 327791.
Details
SOUTHAMPTON
SO19 9HR
Registry Information
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profilesOther notable Charity and VCS support charities
Major UK charities in the same primary sector, drawn from the curated priority cohort.
Trustees
Sectors & Classifications
Also Known As
- Myositis Support Group
- The Dermatomyositis and Polymyositis Support Group
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated