Osteogenesis Imperfecta Foundation Network
Also known as: Oifn
The Osteogenesis Imperfecta Foundation Network support those living with Osteogenesis Imperfecta (OI). Our purposes are to: promote public awareness on the condition, provide information, give advice support and provide equipment to anyone affected by OI; making connections to both the medical community and those living with OI for treatment purposes where necessary.
Activities & Mission
The Osteogenesis Imperfecta Foundation Network support those living with Osteogenesis Imperfecta (OI). Our purposes are to: promote public awareness on the condition, provide information, give advice support and provide equipment to anyone affected by OI; making connections to both the medical community and those living with OI for treatment purposes where necessary.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £8,000 | £8,000 | 0 / 4 | |||
| 2024 | £3,000 | £3,000 | 0 / 4 | |||
| 2023 | £12,000 | £11,000 | 0 / 4 | |||
| 2022 | £1,047 | £688 | 0 / 4 | |||
| 2021 | £243 | £115 | 0 / 4 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Osteogenesis Imperfecta Foundation Network
What does Osteogenesis Imperfecta Foundation Network do?
The Osteogenesis Imperfecta Foundation Network support those living with Osteogenesis Imperfecta (OI). Our purposes are to: promote public awareness on the condition, provide information, give advice support and provide equipment to anyone affected by OI; making connections to both the medical community and those living with OI for treatment purposes where necessary.
How much income did Osteogenesis Imperfecta Foundation Network report in 2025?
Osteogenesis Imperfecta Foundation Network reported total income of £8k and reported expenditure of £8k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Osteogenesis Imperfecta Foundation Network registered as a charity?
Osteogenesis Imperfecta Foundation Network was registered with the Charity Commission for England and Wales on 19 June 2020 as charity number 1190022. It has been registered for 6 years.
Who runs Osteogenesis Imperfecta Foundation Network?
Osteogenesis Imperfecta Foundation Network is governed by a board of 4 trustees. The chair of trustees is Tarela Aghanti. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Osteogenesis Imperfecta Foundation Network operate?
Osteogenesis Imperfecta Foundation Network operates across 5 areas, including Botswana, Ghana, Kenya and 2 others. The full list is shown on its profile.
Is Osteogenesis Imperfecta Foundation Network a registered charity?
Yes — Osteogenesis Imperfecta Foundation Network is a registered charity in England and Wales, charity number 1190022.
Details
ST. ALBANS
Hertfordshire
AL3 5TW
Registry Information
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Also Known As
- Oifn
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated