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Pcd Research

To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research intoA) Understanding PCDB) Novel therapeutic targets and therapies for PCDC) Advocating for improved standard of care for people with PCD

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Activities & Mission

To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research intoA) Understanding PCDB) Novel therapeutic targets and therapies for PCDC) Advocating for improved standard of care for people with PCD

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 14 areas of operation

Financial Information

Latest Income
£238,634
Latest Expenditure
£19,254

Financial Efficiency

Overall Efficiency 8.1%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 8.1%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£238,634
£19,2540 / 0
2024
£40,802
£11,6910 / 0
2023
£153,776
£2,4680 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about Pcd Research

What does Pcd Research do?

To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research intoA) Understanding PCDB) Novel therapeutic targets and therapies for PCDC) Advocating for improved standard of care for people with PCD

How much income did Pcd Research report in 2025?

Pcd Research reported total income of £239k and reported expenditure of £19k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Pcd Research registered as a charity?

Pcd Research was registered with the Charity Commission for England and Wales on 17 January 2022 as charity number 1197528. It has been registered for 4 years.

Who runs Pcd Research?

Pcd Research is governed by a board of 5 trustees. The chair of trustees is Dr Harriet Holme. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Pcd Research operate?

Pcd Research operates across 14 areas, including Australia, Denmark, France and 11 others. The full list is shown on its profile.

Is Pcd Research a registered charity?

Yes — Pcd Research is a registered charity in England and Wales, charity number 1197528.

Details

Address
31A Berrymede Road
LONDON
W4 5JE
Registration Date
17 January 2022
Status
Registered

Registry Information

Organisation Number
5191060
Charity Number
1197528

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Trustees

Dr Harriet Holme Chair
Dr Gurhan Erturan
Florence Barkats
Monica Dawes
Natalie Gehl

Sectors & Classifications

Data & trust

Register data refreshed
14 May 2026
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