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Prader-Willi Syndrome Association UK

Also known as: Pwsa UK

To relieve the Charitable needs of people with Prader Willi Syndrome and their families and carers by the provision of services, advice and support as the Trustee's shall determine.

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Activities & Mission

To relieve the Charitable needs of people with Prader Willi Syndrome and their families and carers by the provision of services, advice and support as the Trustee's shall determine.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£657,800
Latest Expenditure
£507,975

Financial Efficiency

Program Ratio 74.2%
% of income going directly to charitable activities
Overall Efficiency 96.0%
% of expenditure going to programs (vs overhead)
Administrative Ratio 4.2%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £533,338
Charitable Activities £102,206
Other Trading £5,519
Investments £16,737
Other Income £0

Expenditure Categories

Charitable Expenditure £487,845
Raising Funds £17,169
Governance £4,169
Grants to Institutions £0
Other Expenditure £2,961

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£657,800
£507,975£487,845£580,098£533,37610 / 37
2024
£497,574
£501,1010 / 15
2023
£383,383
£518,9000 / 18
2022
£361,569
£364,3430 / 22
2021
£547,574
£328,376£320,867£572,091£502,4368 / 22

Staff column shows: Employees / Volunteers

Frequently asked questions about Prader-Willi Syndrome Association UK

What does Prader-Willi Syndrome Association UK do?

To relieve the Charitable needs of people with Prader Willi Syndrome and their families and carers by the provision of services, advice and support as the Trustee's shall determine.

How much income did Prader-Willi Syndrome Association UK report in 2025?

Prader-Willi Syndrome Association UK reported total income of £658k and reported expenditure of £508k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Prader-Willi Syndrome Association UK registered as a charity?

Prader-Willi Syndrome Association UK was registered with the Charity Commission for England and Wales on 19 February 2014 as charity number 1155846. It has been registered for 12 years.

Who runs Prader-Willi Syndrome Association UK?

Prader-Willi Syndrome Association UK is governed by a board of 12 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Prader-Willi Syndrome Association UK operate?

Prader-Willi Syndrome Association UK operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Prader-Willi Syndrome Association UK a registered charity?

Yes — Prader-Willi Syndrome Association UK is a registered charity in England and Wales, charity number 1155846.

Details

Address
PWSA UK
c/o Metcalf Commercial Decorators
3 Deer Park Road
Moulton Park Industrial Estate
NORTHAMPTON
Registration Date
19 February 2014
Status
Registered

Registry Information

Organisation Number
5044299
Charity Number
1155846

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Trustees

Andrew Abbott
Anne Good
Danny Leslie
Dr Anne Livesey
Dr Evelien Francesca Gevers
Fiona Swinhoe
Jackie Gill
Karen Potts
Laura Pearson
Rebecca Neish
Rosa McKay Polaschek
Susan Passmore

Also Known As

  • Pwsa UK

Data & trust

Register data refreshed
30 July 2026
Report a data issue