Rett UK
Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.
Activities & Mission
Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £341,168 | £416,710 | 0 / 3 | |||
| 2024 | £305,881 | £318,560 | 0 / 3 | |||
| 2023 | £365,072 | £353,849 | 0 / 11 | |||
| 2022 | £319,758 | £311,442 | 0 / 3 | |||
| 2021 | £347,557 | £278,466 | 0 / 4 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Rett UK
What does Rett UK do?
Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.
How much income did Rett UK report in 2025?
Rett UK reported total income of £341k and reported expenditure of £417k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Rett UK registered as a charity?
Rett UK was registered with the Charity Commission for England and Wales on 6 September 2010 as charity number 1137820. It has been registered for 16 years.
Who runs Rett UK?
Rett UK is governed by a board of 13 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Rett UK operate?
Rett UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Rett UK a registered charity?
Yes — Rett UK is a registered charity in England and Wales, charity number 1137820.
Details
CHOBHAM STREET
LUTON
LU1 3BS
Registry Information
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Also governs 1 other charity
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated