Soft UK
Also known as: Support Organisation for Trisomy 13 & 18 and Related Disorders
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.
Activities & Mission
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £69,838 | £66,507 | 0 / 12 | |||
| 2024 | £80,300 | £54,936 | 0 / 15 | |||
| 2023 | £45,407 | £67,147 | 0 / 10 | |||
| 2022 | £74,260 | £59,374 | 0 / 20 | |||
| 2021 | £62,948 | £32,898 | 0 / 12 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Soft UK
What does Soft UK do?
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.
How much income did Soft UK report in 2025?
Soft UK reported total income of £70k and reported expenditure of £67k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Soft UK registered as a charity?
Soft UK was registered with the Charity Commission for England and Wales on 15 May 1991 as charity number 1002918. It has been registered for 35 years.
Who runs Soft UK?
Soft UK is governed by a board of 9 trustees. The chair of trustees is MRS J FOWLER. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Soft UK operate?
Soft UK operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Soft UK a registered charity?
Yes — Soft UK is a registered charity in England and Wales, charity number 1002918.
Details
Uddingston
GLASGOW
G71 5QP
Registry Information
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Trustees
Sectors & Classifications
Also Known As
- Support Organisation for Trisomy 13 & 18 and Related Disorders
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated