Sudep Action

Also known as: Epilepsy Bereaved

SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.

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Activities & Mission

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Country

Scotland

Region

England And Wales

Financial Information

Latest Income

£517,612

Latest Expenditure

£695,986

Financial Efficiency

Program Ratio 123.5%

% of income going directly to charitable activities

Higher than 93% of UK Social welfare charities with income £100K to £1M (sample: 1815). How is this calculated?

Overall Efficiency 91.8%

% of expenditure going to programs (vs overhead)

Higher than 26% of UK Social welfare charities with income £100K to £1M. How is this calculated?

Administrative Ratio 8.4%

Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 24% of UK Social welfare charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £504,358

Charitable Activities £5,578

Other Trading £0

Investments £7,676

Other Income £0

Expenditure Categories

Charitable Expenditure £639,049

Raising Funds £56,937

Governance £1,508

Grants to Institutions £0

Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial Year	Income	Expenditure	Charitable Spending	Net Assets	Reserves	Staff
2025	£517,612	£695,986	£639,049	£382,364	£278,120	10 / 10
2024	£634,046	£513,094	£461,752	£560,738	£312,462	10 / 20
2023	£505,663	£413,153	£367,960	£439,786	£364,054	9 / 20
2022	£386,724	£447,165				0 / 50
2021	£501,183	£425,524	£339,299	£407,717	£354,641	10 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about Sudep Action

What does Sudep Action do?

How much income did Sudep Action report in 2025?

Sudep Action reported total income of £518k and reported expenditure of £696k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

How efficient is Sudep Action?

Sudep Action has a program ratio of 123.5%, meaning that share of its income goes directly to charitable activities. This is higher than 93% of UK Social welfare charities with income £100K to £1M (sample of 1815 charities). See our methodology for how this is calculated.

When was Sudep Action registered as a charity?

Sudep Action was registered with the Charity Commission for England and Wales on 4 November 2015 as charity number 1164250. It has been registered for 11 years.

Who runs Sudep Action?

Sudep Action is governed by a board of 9 trustees. The chair of trustees is Dr JOHN RAYMOND HIRST. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Sudep Action operate?

Sudep Action operates across 2 areas: Scotland and England And Wales.

Is Sudep Action a registered charity?

Yes — Sudep Action is a registered charity in England and Wales, charity number 1164250.