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sudep action

Email Charity

Activities & Mission

SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.

Fundraising

See where Sudep Action is active and find local fundraising opportunities.

Financial Information

Latest Income
£634,046
Latest Expenditure
£513,094

Financial Efficiency

Program Ratio 72.8%
% of income going directly to charitable activities
Overall Efficiency 90.0%
% of expenditure going to programs (vs overhead)
Administrative Ratio 10.2%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £618,187
Charitable Activities £5,335
Other Trading £27
Investments £10,497
Other Income £0

Expenditure Categories

Charitable Expenditure £461,752
Raising Funds £51,342
Governance £1,190
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£634,046£513,094£461,752£560,738£312,46210 / 20
2023£505,663£413,153£367,960£439,786£364,0549 / 20
2022£386,724£447,1650 / 50
2021£501,183£425,524£339,299£407,717£354,64110 / 0
2020£483,995£479,5880 / 38

Staff column shows: Employees / Volunteers

Details

Address
SUDEP ACTION
18 Newbury Street
WANTAGE
OX12 8DA
Registration Date
4 November 2015
Status
Registered

Registry Information

Organisation Number
5065223
Charity Number
1164250

Trustees

SIMON LEES
ALEXANDRA ELEANOR STIRLING
Dr JOHN RAYMOND HIRST
Rachel Shah BA, ICAEW
Dr Judith MAry Shakespeare
David James Raywood Sibree
Dr William Owen Pickrell
Professor Josemir W Sander

Sectors & Classifications

Also Known As

  • EPILEPSY BEREAVED