Sudep Action
Also known as: Epilepsy Bereaved
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
Activities & Mission
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £517,612 | £695,986 | £639,049 | £382,364 | £278,120 | 10 / 10 |
| 2024 | £634,046 | £513,094 | £461,752 | £560,738 | £312,462 | 10 / 20 |
| 2023 | £505,663 | £413,153 | £367,960 | £439,786 | £364,054 | 9 / 20 |
| 2022 | £386,724 | £447,165 | 0 / 50 | |||
| 2021 | £501,183 | £425,524 | £339,299 | £407,717 | £354,641 | 10 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Sudep Action
What does Sudep Action do?
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
How much income did Sudep Action report in 2025?
Sudep Action reported total income of £518k and reported expenditure of £696k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Sudep Action registered as a charity?
Sudep Action was registered with the Charity Commission for England and Wales on 4 November 2015 as charity number 1164250. It has been registered for 11 years.
Who runs Sudep Action?
Sudep Action is governed by a board of 10 trustees. The chair of trustees is Dr JOHN RAYMOND HIRST. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Sudep Action operate?
Sudep Action operates across 2 areas: Scotland and England And Wales.
Is Sudep Action a registered charity?
Yes — Sudep Action is a registered charity in England and Wales, charity number 1164250.
Details
18 Newbury Street
WANTAGE
OX12 8DA
Registry Information
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Also governs 1 other charity
Also governs 1 other charity
Also governs 1 other charity
Also Known As
- Epilepsy Bereaved
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated