The Alkaptonuria Society LTD
Also known as: The Aku Society
The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.
Activities & Mission
The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £367,726 | £294,929 | 0 / 6 | |||
| 2024 | £319,392 | £307,370 | 0 / 12 | |||
| 2023 | £381,037 | £292,618 | 0 / 21 | |||
| 2022 | £586,708 | £300,351 | £299,751 | £854,741 | £216,111 | 3 / 10 |
| 2021 | £335,222 | £272,750 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Alkaptonuria Society LTD
What does The Alkaptonuria Society LTD do?
The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.
How much income did The Alkaptonuria Society LTD report in 2025?
The Alkaptonuria Society LTD reported total income of £368k and reported expenditure of £295k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Alkaptonuria Society LTD registered as a charity?
The Alkaptonuria Society LTD was registered with the Charity Commission for England and Wales on 5 December 2003 as charity number 1101052. It has been registered for 23 years.
Who runs The Alkaptonuria Society LTD?
The Alkaptonuria Society LTD is governed by a board of 8 trustees. The chair of trustees is Dr DUNCAN BATTY. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Alkaptonuria Society LTD operate?
The Alkaptonuria Society LTD operates in England And Wales, as recorded in its Charity Commission filing.
Is The Alkaptonuria Society LTD a registered charity?
Yes — The Alkaptonuria Society LTD is a registered charity in England and Wales, charity number 1101052.
Details
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Also governs 1 other charity
Also governs 1 other charity
Also governs 1 other charity
Also Known As
- The Aku Society
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated