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the alkaptonuria society ltd

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Activities & Mission

The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.

Fundraising

See where The Alkaptonuria Society LTD is active and find local fundraising opportunities.

Financial Information

Latest Income
£367,726
Latest Expenditure
£294,929

Financial Efficiency

Program Ratio 51.1%
% of income going directly to charitable activities
Overall Efficiency 99.8%
% of expenditure going to programs (vs overhead)
Administrative Ratio 1.9%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £304,878
Charitable Activities £281,500
Other Trading £0
Investments £330
Other Income £0

Expenditure Categories

Charitable Expenditure £299,751
Raising Funds £600
Governance £5,152
Grants to Institutions £37,500
Other Expenditure £0

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025£367,726£294,9290 / 6
2024£319,392£307,3700 / 12
2023£381,037£292,6180 / 21
2022£586,708£300,351£299,751£854,741£216,1113 / 10
2021£335,222£272,7500 / 10

Staff column shows: Employees / Volunteers

Details

Address
66 DEVONSHIRE ROAD
CAMBRIDGE
CB1 2BL
Registration Date
5 December 2003
Status
Registered

Registry Information

Organisation Number
4003749
Charity Number
1101052

Trustees

Dr LAKSHMINARAYON RAO RANGANATH
Professor ALAN SHENKIN
Dr NICOLAS SIREAU
Dr DUNCAN BATTY
WILLIAM ANTHONY ESMOND
PROFESSOR JAMES GALLAGHER
Jessica Barnes
Prof George Bou-Gharios

Sectors & Classifications

Also Known As

  • THE AKU SOCIETY