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The Ataxia-Telangiectasia Society

Also known as: The a-T Society

Ataxia Telangiectasia (AT) is a progressive genetic condition which from early childhood causes increasingly severe disability, and shortens lives. The AT Society is dedicated to improving quality of life and quality of care for people living with AT while actively promoting research to lengthen lives and ultimately bring about a cure.

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Activities & Mission

Ataxia Telangiectasia (AT) is a progressive genetic condition which from early childhood causes increasingly severe disability, and shortens lives. The AT Society is dedicated to improving quality of life and quality of care for people living with AT while actively promoting research to lengthen lives and ultimately bring about a cure.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£657,491
Latest Expenditure
£571,908

Financial Efficiency

Program Ratio 64.9%
% of income going directly to charitable activities
Overall Efficiency 74.6%
% of expenditure going to programs (vs overhead)
Administrative Ratio 31.2%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £639,981
Charitable Activities £3,200
Other Trading £435
Investments £13,875
Other Income £0

Expenditure Categories

Charitable Expenditure £426,554
Raising Funds £145,354
Governance £33,147
Grants to Institutions £59,994
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£657,491
£571,908£426,554£485,316£404,7449 / 40
2023
£478,337
£662,5930 / 30
2022
£429,145
£481,4060 / 10
2021
£368,340
£500,6340 / 10
2020
£320,758
£505,5940 / 1

Staff column shows: Employees / Volunteers

Frequently asked questions about The Ataxia-Telangiectasia Society

What does The Ataxia-Telangiectasia Society do?

Ataxia Telangiectasia (AT) is a progressive genetic condition which from early childhood causes increasingly severe disability, and shortens lives. The AT Society is dedicated to improving quality of life and quality of care for people living with AT while actively promoting research to lengthen lives and ultimately bring about a cure.

How much income did The Ataxia-Telangiectasia Society report in 2024?

The Ataxia-Telangiectasia Society reported total income of £657k and reported expenditure of £572k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was The Ataxia-Telangiectasia Society registered as a charity?

The Ataxia-Telangiectasia Society was registered with the Charity Commission for England and Wales on 18 August 2004 as charity number 1105528. It has been registered for 22 years.

Who runs The Ataxia-Telangiectasia Society?

The Ataxia-Telangiectasia Society is governed by a board of 8 trustees. The chair of trustees is Rachel Poupard. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The Ataxia-Telangiectasia Society operate?

The Ataxia-Telangiectasia Society operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is The Ataxia-Telangiectasia Society a registered charity?

Yes — The Ataxia-Telangiectasia Society is a registered charity in England and Wales, charity number 1105528.

Details

Address
Unit 54
Thrales End Business Centre
Thrales End Lane
Harpenden
Herts
AL5 3NS
Registration Date
18 August 2004
Status
Registered

Registry Information

Organisation Number
4010181
Charity Number
1105528

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Trustees

Rachel Poupard Chair
David Macdonald
Dr Jayesh Bhatt
Jhilna Shah
Joe Powell
LIAN CECILIA YARLETT
Nicholas Gull
Penny Jeggo

Also Known As

  • The a-T Society

Data & trust

Register data refreshed
30 July 2026
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