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The Chronic Granulomatous Disorder Society

Also known as: Cgd Society, Cgds, Jeans for Genes

FORMERLY KNOWN AS THE CGD RESEARCH TRUST, THE CHRONIC GRANULOMATOUS DISORDER SOCIETY IS SOLELY CONCERNED WITH THE WELLBEING OF THOSE AFFECTED BY CHRONIC GRANULOMATOUS DISORDER. OUR MISSION IS TO BE THE LEADING GLOBAL SOURCE OF SUPPORT AND INFORMATION ON THIS RARE GENETIC DISORDER AND THEREBY CREATE A CHARITY THAT IS RESPECTED BY AFFECTED FAMILIES AND MEDICAL PROFESSIONALS THROUGHOUT THE WORLD.

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Activities & Mission

FORMERLY KNOWN AS THE CGD RESEARCH TRUST, THE CHRONIC GRANULOMATOUS DISORDER SOCIETY IS SOLELY CONCERNED WITH THE WELLBEING OF THOSE AFFECTED BY CHRONIC GRANULOMATOUS DISORDER. OUR MISSION IS TO BE THE LEADING GLOBAL SOURCE OF SUPPORT AND INFORMATION ON THIS RARE GENETIC DISORDER AND THEREBY CREATE A CHARITY THAT IS RESPECTED BY AFFECTED FAMILIES AND MEDICAL PROFESSIONALS THROUGHOUT THE WORLD.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£359,337
Latest Expenditure
£205,270

Financial Efficiency

Overall Efficiency 57.1%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 57.1%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

The Commission record shows this related event on the register:

  • Asset transfer in in 2011 — The Chronic Granulomatous Disorder Research Trust (organisation 1003425)
Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£359,337
£205,2700 / 4
2024
£107,460
£200,7390 / 3
2023
£92,998
£177,4780 / 3
2022
£126,860
£123,6150 / 0
2021
£83,092
£160,0390 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about The Chronic Granulomatous Disorder Society

What does The Chronic Granulomatous Disorder Society do?

FORMERLY KNOWN AS THE CGD RESEARCH TRUST, THE CHRONIC GRANULOMATOUS DISORDER SOCIETY IS SOLELY CONCERNED WITH THE WELLBEING OF THOSE AFFECTED BY CHRONIC GRANULOMATOUS DISORDER. OUR MISSION IS TO BE THE LEADING GLOBAL SOURCE OF SUPPORT AND INFORMATION ON THIS RARE GENETIC DISORDER AND THEREBY CREATE A CHARITY THAT IS RESPECTED BY AFFECTED FAMILIES AND MEDICAL PROFESSIONALS THROUGHOUT THE WORLD.

How much income did The Chronic Granulomatous Disorder Society report in 2025?

The Chronic Granulomatous Disorder Society reported total income of £359k and reported expenditure of £205k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was The Chronic Granulomatous Disorder Society registered as a charity?

The Chronic Granulomatous Disorder Society was registered with the Charity Commission for England and Wales on 22 July 2011 as charity number 1143049. It has been registered for 15 years.

Who runs The Chronic Granulomatous Disorder Society?

The Chronic Granulomatous Disorder Society is governed by a board of 8 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The Chronic Granulomatous Disorder Society operate?

The Chronic Granulomatous Disorder Society operates across 2 areas: Scotland and England And Wales.

Is The Chronic Granulomatous Disorder Society a registered charity?

Yes — The Chronic Granulomatous Disorder Society is a registered charity in England and Wales, charity number 1143049.

Details

Address
PO Box 454
DARTFORD
DA1 9PE
Registration Date
22 July 2011
Status
Registered

Registry Information

Organisation Number
5019375
Charity Number
1143049

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Trustees

Andrew Worthington
Chikai Lai
Devina Murphy
Joshua Dylan Stevens
Lucie Eadon
Maria Elizabeth Loughenbury
Matthew Strawbridge
Sarah Robertson

Also Known As

  • Cgd Society
  • Cgds
  • Jeans for Genes

Data & trust

Register data refreshed
30 July 2026
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