The Heaton - Ellis Trust
The Trust was set up to help extinguish Motor Neurone Disease (MND) for which there is no specific test or effective treatment. The goal for the MND gene-hunting programme is to discover all the genes responsible for causing MND. Once achieved drugs can be screened that can arrest and even reverse motor neurone degeneration. Funds raised by the trust will help to fund the gene-hunting initiative.
Activities & Mission
The Trust was set up to help extinguish Motor Neurone Disease (MND) for which there is no specific test or effective treatment. The goal for the MND gene-hunting programme is to discover all the genes responsible for causing MND. Once achieved drugs can be screened that can arrest and even reverse motor neurone degeneration. Funds raised by the trust will help to fund the gene-hunting initiative.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Local Authority
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £153,052 | £122,174 | 0 / 0 | |||
| 2024 | £120,211 | £35,775 | 0 / 0 | |||
| 2021 | £18,761 | £2,081 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Heaton - Ellis Trust
What does The Heaton - Ellis Trust do?
The Trust was set up to help extinguish Motor Neurone Disease (MND) for which there is no specific test or effective treatment. The goal for the MND gene-hunting programme is to discover all the genes responsible for causing MND. Once achieved drugs can be screened that can arrest and even reverse motor neurone degeneration. Funds raised by the trust will help to fund the gene-hunting initiative.
How much income did The Heaton - Ellis Trust report in 2025?
The Heaton - Ellis Trust reported total income of £153k and reported expenditure of £122k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Heaton - Ellis Trust registered as a charity?
The Heaton - Ellis Trust was registered with the Charity Commission for England and Wales on 3 November 2008 as charity number 1126534. It has been registered for 18 years.
Who runs The Heaton - Ellis Trust?
The Heaton - Ellis Trust is governed by a board of 3 trustees. The chair of trustees is SIMON ARBER. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Heaton - Ellis Trust operate?
The Heaton - Ellis Trust operates across 4 areas: Hampshire, Oxfordshire, Suffolk and West Berkshire.
Is The Heaton - Ellis Trust a registered charity?
Yes — The Heaton - Ellis Trust is a registered charity in England and Wales, charity number 1126534.
Details
Summertown Pavilion
18-24 Middle Way
OXFORD
OX2 7LG
Registry Information
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Also governs 1 other charity
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Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
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