The Lily Foundation
We fund research to improve diagnosis, develop treatments and we hope to ultimately find a cure for Mitochondrial Disease. We help build support networks by connecting affected families and also offer direct family support. We aim to raise awareness of mitochondrial disease by improving patient access to information, supporting professional training, and speaking at schools and public events.
Activities & Mission
We fund research to improve diagnosis, develop treatments and we hope to ultimately find a cure for Mitochondrial Disease. We help build support networks by connecting affected families and also offer direct family support. We aim to raise awareness of mitochondrial disease by improving patient access to information, supporting professional training, and speaking at schools and public events.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Higher than 83% of UK Beneficiary group charities with income £100K to £1M (sample: 3459). How is this calculated?
Higher than 11% of UK Beneficiary group charities with income £100K to £1M. How is this calculated?
Lower overhead than 6% of UK Beneficiary group charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £974,389 | £1,414,075 | £1,033,141 | £940,511 | £896,645 | 10 / 30 |
| 2023 | £1,436,646 | £1,297,244 | £952,812 | £1,380,197 | £1,239,465 | 12 / 30 |
| 2022 | £939,122 | £679,819 | £439,709 | £1,240,795 | £567,000 | 9 / 30 |
| 2021 | £580,954 | £508,405 | £387,895 | £981,492 | £434,000 | 5 / 30 |
| 2020 | £709,393 | £817,407 | £639,678 | £908,943 | £330,000 | 5 / 30 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Lily Foundation
What does The Lily Foundation do?
We fund research to improve diagnosis, develop treatments and we hope to ultimately find a cure for Mitochondrial Disease. We help build support networks by connecting affected families and also offer direct family support. We aim to raise awareness of mitochondrial disease by improving patient access to information, supporting professional training, and speaking at schools and public events.
How much income did The Lily Foundation report in 2024?
The Lily Foundation reported total income of £974k and reported expenditure of £1.41m for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.
How efficient is The Lily Foundation?
The Lily Foundation has a program ratio of 106.0%, meaning that share of its income goes directly to charitable activities. This is higher than 83% of UK Beneficiary group charities with income £100K to £1M (sample of 3459 charities). See our methodology for how this is calculated.
When was The Lily Foundation registered as a charity?
The Lily Foundation was registered with the Charity Commission for England and Wales on 19 December 2007 as charity number 1122071. It has been registered for 19 years.
Who runs The Lily Foundation?
The Lily Foundation is governed by a board of 9 trustees. The chair of trustees is Ben Carter. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Lily Foundation operate?
The Lily Foundation operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Lily Foundation a registered charity?
Yes — The Lily Foundation is a registered charity in England and Wales, charity number 1122071.
Details
WARLINGHAM
CR6 9LD
Registry Information
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Major UK charities in the same primary sector, drawn from the curated priority cohort.
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Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated