The Lowe Syndrome Trust
Also known as: Lowe Syndrome Trust, Lst
TO RAISE AWARENESS OF LOWE SYNDROME, HELP FAMILIES INCLUSIVENESS AND TO STIMULATE GLOBAL MEDICAL RESEARCH FOR BETTER TREATMENT.
Activities & Mission
TO RAISE AWARENESS OF LOWE SYNDROME, HELP FAMILIES INCLUSIVENESS AND TO STIMULATE GLOBAL MEDICAL RESEARCH FOR BETTER TREATMENT.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £19,707 | £49,414 | 0 / 4 | |||
| 2024 | £38,104 | £28,794 | 0 / 15 | |||
| 2022 | £18,566 | £69,554 | 0 / 14 | |||
| 2021 | £57,582 | £56,722 | 0 / 3 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Lowe Syndrome Trust
What does The Lowe Syndrome Trust do?
TO RAISE AWARENESS OF LOWE SYNDROME, HELP FAMILIES INCLUSIVENESS AND TO STIMULATE GLOBAL MEDICAL RESEARCH FOR BETTER TREATMENT.
How much income did The Lowe Syndrome Trust report in 2025?
The Lowe Syndrome Trust reported total income of £20k and reported expenditure of £49k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Lowe Syndrome Trust registered as a charity?
The Lowe Syndrome Trust was registered with the Charity Commission for England and Wales on 23 June 2000 as charity number 1081241. It has been registered for 26 years.
Who runs The Lowe Syndrome Trust?
The Lowe Syndrome Trust is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Lowe Syndrome Trust operate?
The Lowe Syndrome Trust operates across 3 areas: Italy, United States and England And Wales.
Is The Lowe Syndrome Trust a registered charity?
Yes — The Lowe Syndrome Trust is a registered charity in England and Wales, charity number 1081241.
Details
673 Finchley Road
LONDON
NW2 2JP
Registry Information
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profilesTrustees
Also Known As
- Lowe Syndrome Trust
- Lst
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated