The Osteopetrosis Support Trust
Also known as: O S T
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
Activities & Mission
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Frequently asked questions about The Osteopetrosis Support Trust
What does The Osteopetrosis Support Trust do?
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
When was The Osteopetrosis Support Trust registered as a charity?
The Osteopetrosis Support Trust was registered with the Charity Commission for England and Wales on 21 July 1992 as charity number 1013052. It has been registered for 34 years.
Who runs The Osteopetrosis Support Trust?
The Osteopetrosis Support Trust is governed by a board of 5 trustees. The chair of trustees is Wendy Jayne Wilson. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Osteopetrosis Support Trust operate?
The Osteopetrosis Support Trust operates in England And Wales, as recorded in its Charity Commission filing.
Is The Osteopetrosis Support Trust a registered charity?
Yes — The Osteopetrosis Support Trust is a registered charity in England and Wales, charity number 1013052.
Details
Notch Road
Winstone
CIRENCESTER
GL7 7JU
Registry Information
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Sectors & Classifications
Also Known As
- O S T
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated