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the schinzel-giedion syndrome foundation

The charity supports children and young people and people with disabilities. The Schinzel-Giedion Syndrome Foundation is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by making grants to individuals. The charity is based in Crawley and operates in England And Wales, United States, and various other locations.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.

Fundraising

See where The Schinzel-Giedion Syndrome Foundation is active and find local fundraising opportunities.

Financial Information

Latest Income
£85,501
Latest Expenditure
£64,835

Financial Efficiency

Overall Efficiency 75.8%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 75.8%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£85,501£64,8350 / 0
2023£59,298£4,9610 / 0
2022£20,427£8,3590 / 0
2021£29,260£1,7930 / 0

Staff column shows: Employees / Volunteers