The Schinzel-Giedion Syndrome Foundation
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
Activities & Mission
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £68,345 | £64,185 | 0 / 0 | |||
| 2024 | £85,501 | £64,835 | 0 / 0 | |||
| 2023 | £59,298 | £4,961 | 0 / 0 | |||
| 2022 | £20,427 | £8,359 | 0 / 0 | |||
| 2021 | £29,260 | £1,793 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Schinzel-Giedion Syndrome Foundation
What does The Schinzel-Giedion Syndrome Foundation do?
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
How much income did The Schinzel-Giedion Syndrome Foundation report in 2025?
The Schinzel-Giedion Syndrome Foundation reported total income of £68k and reported expenditure of £64k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Schinzel-Giedion Syndrome Foundation registered as a charity?
The Schinzel-Giedion Syndrome Foundation was registered with the Charity Commission for England and Wales on 13 November 2019 as charity number 1186327. It has been registered for 7 years.
Who runs The Schinzel-Giedion Syndrome Foundation?
The Schinzel-Giedion Syndrome Foundation is governed by a board of 3 trustees. The chair of trustees is Dr Nuala Summerfield. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Schinzel-Giedion Syndrome Foundation operate?
The Schinzel-Giedion Syndrome Foundation operates across 4 areas: Canada, Denmark, United States and England And Wales.
Is The Schinzel-Giedion Syndrome Foundation a registered charity?
Yes — The Schinzel-Giedion Syndrome Foundation is a registered charity in England and Wales, charity number 1186327.
Details
Poles Lane
Lowfield Heath
CRAWLEY
RH11 0PX
Registry Information
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profilesOther notable Beneficiary group charities
Major UK charities in the same primary sector, drawn from the curated priority cohort.
Trustees
Sectors & Classifications
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated