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The Society For The Study Of Inborn Errors Of Metabolism

Also known as: S S I E M

The aim of SSIEM is to foster the study of inherited metabolic disorders and related topics by arranging scientific meetings, publications and training. SSIEM is willing to spread interest and study in inborn errors around the world by selectively supporting membership and attendance at conferences from areas where financial resources are more limited.

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Activities & Mission

The aim of SSIEM is to foster the study of inherited metabolic disorders and related topics by arranging scientific meetings, publications and training. SSIEM is willing to spread interest and study in inborn errors around the world by selectively supporting membership and attendance at conferences from areas where financial resources are more limited.

Grants

The Society For The Study Of Inborn Errors Of Metabolism makes grants as part of its work.

Gives grants to
organisations and individuals
Grants paid (2025)
£69,686
Who it helps
other charities or voluntary bodies and other defined groups
What it supports
education and training and the advancement of health or the saving of lives

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 80 areas of operation

Financial Information

Latest Income
£502,272
Latest Expenditure
£563,528

Financial Efficiency

Program Ratio 112.2%
% of income going directly to charitable activities

Higher than 87% of UK Arts charities with income £100K to £1M (sample: 260). How is this calculated?

Overall Efficiency 100.0%
% of expenditure going to programs (vs overhead)

Higher than 100% of UK Arts charities with income £100K to £1M. How is this calculated?

Administrative Ratio 4.9%
Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 49% of UK Arts charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £0
Charitable Activities £477,373
Other Trading £0
Investments £24,899
Other Income £0

Expenditure Categories

Charitable Expenditure £563,528
Raising Funds £0
Governance £27,478
Grants to Institutions £69,686
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£502,272
£563,528£563,528£3,028,111£3,028,1112 / 0
2024
£2,473,605
£2,004,507£2,004,507£3,054,792£3,054,7922 / 0
2023
£584,394
£529,972£529,972£2,633,021£2,633,0212 / 0
2022
£2,394,873
£1,965,701£1,965,701£2,551,796£2,551,7962 / 0
2021
£509,193
£576,100£576,100£2,393,829£2,393,8292 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about The Society For The Study Of Inborn Errors Of Metabolism

What does The Society For The Study Of Inborn Errors Of Metabolism do?

The aim of SSIEM is to foster the study of inherited metabolic disorders and related topics by arranging scientific meetings, publications and training. SSIEM is willing to spread interest and study in inborn errors around the world by selectively supporting membership and attendance at conferences from areas where financial resources are more limited.

How much income did The Society For The Study Of Inborn Errors Of Metabolism report in 2025?

The Society For The Study Of Inborn Errors Of Metabolism reported total income of £502k and reported expenditure of £564k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

How efficient is The Society For The Study Of Inborn Errors Of Metabolism?

The Society For The Study Of Inborn Errors Of Metabolism has a program ratio of 112.2%, meaning that share of its income goes directly to charitable activities. This is higher than 87% of UK Arts charities with income £100K to £1M (sample of 260 charities). See our methodology for how this is calculated.

When was The Society For The Study Of Inborn Errors Of Metabolism registered as a charity?

The Society For The Study Of Inborn Errors Of Metabolism was registered with the Charity Commission for England and Wales on 23 April 1992 as charity number 1010639. It has been registered for 34 years.

Who runs The Society For The Study Of Inborn Errors Of Metabolism?

The Society For The Study Of Inborn Errors Of Metabolism is governed by a board of 14 trustees. The chair of trustees is Prof Manuel Schiff. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The Society For The Study Of Inborn Errors Of Metabolism operate?

The Society For The Study Of Inborn Errors Of Metabolism operates across 80 areas, including Algeria, Argentina, Australia and 77 others. The full list is shown on its profile.

Is The Society For The Study Of Inborn Errors Of Metabolism a registered charity?

Yes — The Society For The Study Of Inborn Errors Of Metabolism is a registered charity in England and Wales, charity number 1010639.

Details

Contact (address, email, phone)
Registration Date
23 April 1992
Status
Registered

Registry Information

Organisation Number
1010639
Charity Number
1010639

Trustees

Prof Manuel Schiff Chair
Alice Dianin RD
Ann Smith
Dr Andrea Elena Dardis
Dr Elaine Mary Murphy
Dr Helen Michelakakis
Dr Hugo Rocha
Dr Stephanie Grunewald
Prof Dr Med Ina Maria Knerr
Prof Dr med Matthias Rudolf Baumgartner
Prof Dr Mirjam Langeveld
Prof Dr Stefan Koelker
Prof Philippa Beth Mills
Prof Tomas Honzik

Sectors & Classifications

Also Known As

  • S S I E M

Data & trust

Register data refreshed
2 November 2026
Report a data issue