Williams Syndrome Foundation Limited
Also known as: The Infantile Hypercalcaemia Foundation Limited
The Williams Syndrome Foundation, founded in 1980, is run for parents by parents with the aim of providing information and support to for people with WS, and those who love, care for and educate them. We fund research into WS to inform and update our guidelines, webinars and publications. We provide opportunities for families to meet and share peer support, online and in person, across the UK.
Activities & Mission
The Williams Syndrome Foundation, founded in 1980, is run for parents by parents with the aim of providing information and support to for people with WS, and those who love, care for and educate them. We fund research into WS to inform and update our guidelines, webinars and publications. We provide opportunities for families to meet and share peer support, online and in person, across the UK.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £207,836 | £197,481 | 0 / 38 | |||
| 2024 | £219,883 | £156,410 | 0 / 35 | |||
| 2023 | £188,132 | £294,863 | 0 / 35 | |||
| 2022 | £158,512 | £125,784 | 0 / 36 | |||
| 2021 | £95,506 | £88,236 | 0 / 35 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Williams Syndrome Foundation Limited
What does Williams Syndrome Foundation Limited do?
The Williams Syndrome Foundation, founded in 1980, is run for parents by parents with the aim of providing information and support to for people with WS, and those who love, care for and educate them. We fund research into WS to inform and update our guidelines, webinars and publications. We provide opportunities for families to meet and share peer support, online and in person, across the UK.
How much income did Williams Syndrome Foundation Limited report in 2025?
Williams Syndrome Foundation Limited reported total income of £208k and reported expenditure of £197k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Williams Syndrome Foundation Limited registered as a charity?
Williams Syndrome Foundation Limited was registered with the Charity Commission for England and Wales on 11 November 1980 as charity number 281014. It has been registered for 46 years.
Who runs Williams Syndrome Foundation Limited?
Williams Syndrome Foundation Limited is governed by a board of 11 trustees. The chair of trustees is Paul Richard Lawrie. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Williams Syndrome Foundation Limited operate?
Williams Syndrome Foundation Limited operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Williams Syndrome Foundation Limited a registered charity?
Yes — Williams Syndrome Foundation Limited is a registered charity in England and Wales, charity number 281014.
Details
5 Charter House
Lord Montgomery Way
PORTSMOUTH
PO1 2SN
Registry Information
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Sectors & Classifications
Also Known As
- The Infantile Hypercalcaemia Foundation Limited
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated