Wolf Hirschhorn Syndrome Trust
The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.
Activities & Mission
The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £15,706 | £843 | 0 / 11 | |||
| 2024 | £17,680 | £26,408 | 0 / 8 | |||
| 2022 | £11,685 | £17,511 | 0 / 6 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Wolf Hirschhorn Syndrome Trust
What does Wolf Hirschhorn Syndrome Trust do?
The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.
How much income did Wolf Hirschhorn Syndrome Trust report in 2025?
Wolf Hirschhorn Syndrome Trust reported total income of £16k and reported expenditure of £843.00 for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Wolf Hirschhorn Syndrome Trust registered as a charity?
Wolf Hirschhorn Syndrome Trust was registered with the Charity Commission for England and Wales on 31 May 1994 as charity number 1038219. It has been registered for 32 years.
Who runs Wolf Hirschhorn Syndrome Trust?
Wolf Hirschhorn Syndrome Trust is governed by a board of 4 trustees. The chair of trustees is Gareth Griffiths. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Wolf Hirschhorn Syndrome Trust operate?
Wolf Hirschhorn Syndrome Trust operates across 3 areas: Ireland, Scotland and England And Wales.
Is Wolf Hirschhorn Syndrome Trust a registered charity?
Yes — Wolf Hirschhorn Syndrome Trust is a registered charity in England and Wales, charity number 1038219.
Details
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- 30 July 2026
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