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Acrodysostosis Support & Research

The activities of the CIO are to relieve the needs of those affected by Acrodysostosis by promoting greater understanding of the causes, symptoms and treatment of Acrodysostosis in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms

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Activities & Mission

The activities of the CIO are to relieve the needs of those affected by Acrodysostosis by promoting greater understanding of the causes, symptoms and treatment of Acrodysostosis in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£2,036
Latest Expenditure
£1,937

Financial Efficiency

Expenditure Ratio 95.1%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£2,036
£1,9370 / 10
2023
£5,076
£3,9250 / 5
2022
£22,836
£23,2840 / 5
2021
£12,391
£63,3180 / 6
2020
£89,873
£3,8490 / 4

Staff column shows: Employees / Volunteers

Frequently asked questions about Acrodysostosis Support & Research

What does Acrodysostosis Support & Research do?

The activities of the CIO are to relieve the needs of those affected by Acrodysostosis by promoting greater understanding of the causes, symptoms and treatment of Acrodysostosis in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms

How much income did Acrodysostosis Support & Research report in 2024?

Acrodysostosis Support & Research reported total income of £2k and reported expenditure of £2k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was Acrodysostosis Support & Research registered as a charity?

Acrodysostosis Support & Research was registered with the Charity Commission for England and Wales on 5 April 2019 as charity number 1182818. It has been registered for 7 years.

Who runs Acrodysostosis Support & Research?

Acrodysostosis Support & Research is governed by a board of 3 trustees. The chair of trustees is Nina Samantha Knight. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Acrodysostosis Support & Research operate?

Acrodysostosis Support & Research operates in England And Wales, as recorded in its Charity Commission filing.

Is Acrodysostosis Support & Research a registered charity?

Yes — Acrodysostosis Support & Research is a registered charity in England and Wales, charity number 1182818.

Details

Contact (address, email, phone)
Registration Date
5 April 2019
Status
Registered

Registry Information

Organisation Number
5136974
Charity Number
1182818

Trustees

Nina Samantha Knight Chair
Jan Sara Hine
Sarah Louise Denney

Data & trust

Register data refreshed
19 October 2026
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