Alport UK
Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.
Activities & Mission
Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £178,592 | £166,679 | 0 / 15 | |||
| 2024 | £154,267 | £155,496 | 0 / 15 | |||
| 2023 | £92,190 | £93,858 | 0 / 78 | |||
| 2022 | £37,443 | £47,756 | 0 / 15 | |||
| 2021 | £60,067 | £28,327 | 0 / 15 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Alport UK
What does Alport UK do?
Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.
How much income did Alport UK report in 2025?
Alport UK reported total income of £179k and reported expenditure of £167k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Alport UK registered as a charity?
Alport UK was registered with the Charity Commission for England and Wales on 27 November 2013 as charity number 1154774. It has been registered for 13 years.
Who runs Alport UK?
Alport UK is governed by a board of 7 trustees. The chair of trustees is Professor Frances Anne Flinter. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Alport UK operate?
Alport UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Alport UK a registered charity?
Yes — Alport UK is a registered charity in England and Wales, charity number 1154774.
Details
Cirencester
GL7 9JA
Registry Information
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Also governs 2 other charities
Also governs 1 other charity
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated