Alstrom Syndrome UK
Also known as: As UK
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
Activities & Mission
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £379,388 | £335,401 | 0 / 5 | |||
| 2024 | £354,666 | £340,985 | 0 / 5 | |||
| 2023 | £370,768 | £364,836 | 0 / 5 | |||
| 2022 | £300,024 | £303,193 | 0 / 5 | |||
| 2021 | £375,024 | £232,270 | 0 / 5 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Alstrom Syndrome UK
What does Alstrom Syndrome UK do?
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
How much income did Alstrom Syndrome UK report in 2025?
Alstrom Syndrome UK reported total income of £379k and reported expenditure of £335k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Alstrom Syndrome UK registered as a charity?
Alstrom Syndrome UK was registered with the Charity Commission for England and Wales on 25 August 1998 as charity number 1071196. It has been registered for 28 years.
Who runs Alstrom Syndrome UK?
Alstrom Syndrome UK is governed by a board of 10 trustees. The chair of trustees is Sharon Bates. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Alstrom Syndrome UK operate?
Alstrom Syndrome UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Alstrom Syndrome UK a registered charity?
Yes — Alstrom Syndrome UK is a registered charity in England and Wales, charity number 1071196.
Details
Barnstaple Hill
Swimbridge
BARNSTAPLE
Devon
EX32 0PH
Registry Information
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Also governs 1 other charity
Also governs 1 other charity
Also Known As
- As UK
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated