Association For Glycogen Storage Disease (uk) Limited
Also known as: Agsd (uk), Pompe UK
We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.
Activities & Mission
We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.
Grants
Association For Glycogen Storage Disease (uk) Limited makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £212,211
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, people with disabilities and other defined groups
- What it supports
- education and training, the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £173,952 | £212,211 | 0 / 35 | |||
| 2024 | £242,277 | £197,548 | 0 / 37 | |||
| 2023 | £143,716 | £156,761 | 0 / 37 | |||
| 2022 | £131,749 | £144,848 | 0 / 60 | |||
| 2021 | £122,881 | £141,668 | 0 / 55 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Association For Glycogen Storage Disease (uk) Limited
What does Association For Glycogen Storage Disease (uk) Limited do?
We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.
How much income did Association For Glycogen Storage Disease (uk) Limited report in 2025?
Association For Glycogen Storage Disease (uk) Limited reported total income of £174k and reported expenditure of £212k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Association For Glycogen Storage Disease (uk) Limited registered as a charity?
Association For Glycogen Storage Disease (uk) Limited was registered with the Charity Commission for England and Wales on 22 October 2009 as charity number 1132271. It has been registered for 17 years.
Who runs Association For Glycogen Storage Disease (uk) Limited?
Association For Glycogen Storage Disease (uk) Limited is governed by a board of 7 trustees. The chair of trustees is Dr Florence Osbourne. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Association For Glycogen Storage Disease (uk) Limited operate?
Association For Glycogen Storage Disease (uk) Limited operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Association For Glycogen Storage Disease (uk) Limited a registered charity?
Yes — Association For Glycogen Storage Disease (uk) Limited is a registered charity in England and Wales, charity number 1132271.
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Registry Information
Trustees
Also Known As
- Agsd (uk)
- Pompe UK
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated