Barth Syndrome UK
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
Activities & Mission
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
Grants
Barth Syndrome UK makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £36,586
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, people with disabilities, other charities or voluntary bodies and other defined groups
- What it supports
- general charitable purposes and the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2020 — Barth Syndrome Trust (organisation 4002412)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £58,080 | £36,586 | 0 / 0 | |||
| 2024 | £25,067 | £33,206 | 0 / 1 | |||
| 2023 | £79,374 | £60,567 | 0 / 3 | |||
| 2022 | £11,845 | £46,135 | 0 / 2 | |||
| 2021 | £31,007 | £44,840 | 0 / 3 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Barth Syndrome UK
What does Barth Syndrome UK do?
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
How much income did Barth Syndrome UK report in 2025?
Barth Syndrome UK reported total income of £58k and reported expenditure of £37k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Barth Syndrome UK registered as a charity?
Barth Syndrome UK was registered with the Charity Commission for England and Wales on 31 January 2019 as charity number 1181830. It has been registered for 7 years.
Who runs Barth Syndrome UK?
Barth Syndrome UK is governed by a board of 5 trustees. The chair of trustees is RALPH STEVEN EASTERBROOK. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Barth Syndrome UK operate?
Barth Syndrome UK operates across 4 areas: Ireland, Scotland, United States and England And Wales.
Is Barth Syndrome UK a registered charity?
Yes — Barth Syndrome UK is a registered charity in England and Wales, charity number 1181830.
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Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated