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Batten Fighters Forever

Also known as: Bff

Batten Fighters Forever is a charity supporting people with Batten Disease by raising awareness of the disease, providing information and where practical help/ support can be found and providing grants to support families with the disease, organisations supporting such families and research into treatments.

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Activities & Mission

Batten Fighters Forever is a charity supporting people with Batten Disease by raising awareness of the disease, providing information and where practical help/ support can be found and providing grants to support families with the disease, organisations supporting such families and research into treatments.

Grants

Batten Fighters Forever is a grant-making charity: making grants is its main activity.

Gives grants to
organisations and individuals
Total spending (2025)
£10,815
Only charities with income over £500,000 file a separate grants figure.
What it supports
disability

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£14,547
Latest Expenditure
£10,815

Financial Efficiency

Expenditure Ratio 74.3%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£14,547
£10,8150 / 0
2024
£5,037
£4,4660 / 0
2023
£4,295
£6,2790 / 0
2022
£15,754
£8,0940 / 0
2021
£7,355
£7,9370 / 5

Staff column shows: Employees / Volunteers

Frequently asked questions about Batten Fighters Forever

What does Batten Fighters Forever do?

Batten Fighters Forever is a charity supporting people with Batten Disease by raising awareness of the disease, providing information and where practical help/ support can be found and providing grants to support families with the disease, organisations supporting such families and research into treatments.

How much income did Batten Fighters Forever report in 2025?

Batten Fighters Forever reported total income of £15k and reported expenditure of £11k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Batten Fighters Forever registered as a charity?

Batten Fighters Forever was registered with the Charity Commission for England and Wales on 2 April 2019 as charity number 1182753. It has been registered for 7 years.

Who runs Batten Fighters Forever?

Batten Fighters Forever is governed by a board of 5 trustees. The chair of trustees is Andrew George Hover. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Batten Fighters Forever operate?

Batten Fighters Forever operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Batten Fighters Forever a registered charity?

Yes — Batten Fighters Forever is a registered charity in England and Wales, charity number 1182753.

Details

Contact (address, email, phone)
Registration Date
2 April 2019
Status
Registered

Registry Information

Organisation Number
5139309
Charity Number
1182753

Trustees

Andrew George Hover Chair
David Worn
Lisa Kathleen Hover
Sarah Beverley Helen Horton
Sarah Louise Sillince

Also Known As

  • Bff

Data & trust

Register data refreshed
19 October 2026
Report a data issue