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Beacon: For Rare Diseases LTD

Also known as: Findacure Foundation

Findacure works to:Empower patient groups to build their patient community, develop as a charity, and drive treatment research and development.Promote collaboration between rare disease stakeholders to facilitate treatment development for all.

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Activities & Mission

Findacure works to:Empower patient groups to build their patient community, develop as a charity, and drive treatment research and development.Promote collaboration between rare disease stakeholders to facilitate treatment development for all.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£691,035
Latest Expenditure
£661,717

Financial Efficiency

Program Ratio 88.2%
% of income going directly to charitable activities

Higher than 55% of UK Research charities with income £100K to £1M (sample: 273). How is this calculated?

Overall Efficiency 92.1%
% of expenditure going to programs (vs overhead)

Higher than 38% of UK Research charities with income £100K to £1M. How is this calculated?

Administrative Ratio 8.6%
Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 39% of UK Research charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £209,815
Charitable Activities £427,285
Other Trading £53,935
Investments £0
Other Income £0

Expenditure Categories

Charitable Expenditure £609,453
Raising Funds £52,264
Governance £4,799
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£691,035
£661,717£609,453£220,802£64,22511 / 10
2024
£523,301
£478,828£437,776£191,484£74,61310 / 5
2022
£269,865
£318,3430 / 0
2021
£324,970
£196,1490 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about Beacon: For Rare Diseases LTD

What does Beacon: For Rare Diseases LTD do?

Findacure works to:Empower patient groups to build their patient community, develop as a charity, and drive treatment research and development.Promote collaboration between rare disease stakeholders to facilitate treatment development for all.

How much income did Beacon: For Rare Diseases LTD report in 2025?

Beacon: For Rare Diseases LTD reported total income of £691k and reported expenditure of £662k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

How efficient is Beacon: For Rare Diseases LTD?

Beacon: For Rare Diseases LTD has a program ratio of 88.2%, meaning that share of its income goes directly to charitable activities. This is higher than 55% of UK Research charities with income £100K to £1M (sample of 273 charities). See our methodology for how this is calculated.

When was Beacon: For Rare Diseases LTD registered as a charity?

Beacon: For Rare Diseases LTD was registered with the Charity Commission for England and Wales on 7 November 2012 as charity number 1149646. It has been registered for 14 years.

Who runs Beacon: For Rare Diseases LTD?

Beacon: For Rare Diseases LTD is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Beacon: For Rare Diseases LTD operate?

Beacon: For Rare Diseases LTD operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Beacon: For Rare Diseases LTD a registered charity?

Yes — Beacon: For Rare Diseases LTD is a registered charity in England and Wales, charity number 1149646.

Details

Address
66 DEVONSHIRE ROAD
CAMBRIDGE
CB1 2BL
Registration Date
7 November 2012
Status
Registered

Registry Information

Organisation Number
5030731
Charity Number
1149646

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Trustees

ANDREW MILLIGAN
Dr ANTHONY KENT HALL
Dr Rebecca Godfrey
Also governs 1 other charity
Joanne Patra Pisani
Also governs 2 other charities
Kamlesh Kanaiyalal Sheth
Michael Paul Wilbur
Also governs 1 other charity
Scott Robin Hutchings
Also governs 1 other charity
Shannon Marie Gunn
Sophie Costello

Sectors & Classifications

Also Known As

  • Findacure Foundation

Data & trust

Register data refreshed
14 May 2026
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