Skip to main content Skip to navigation

Bruck Syndrome

We relieve the needs of individuals and families affected by Bruck Syndrome across the UK. We provide friendship and communication to reduce isolation , raise public awareness , and educate the medical profession. We also encourage research into treatments and disseminate findings to protect health and offer reassurance to those diagnosed and their carers.

Contact Charity

Activities & Mission

We relieve the needs of individuals and families affected by Bruck Syndrome across the UK. We provide friendship and communication to reduce isolation , raise public awareness , and educate the medical profession. We also encourage research into treatments and disseminate findings to protect health and offer reassurance to those diagnosed and their carers.

Grants

Bruck Syndrome makes grants as part of its work.

Gives grants to
organisations and individuals
Who it helps
children and young people, people with disabilities, other charities or voluntary bodies and the general public
What it supports
education and training, the advancement of health or the saving of lives and disability

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

Is this your charity?

Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.

Learn more about premium profiles See a sample profile

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Frequently asked questions about Bruck Syndrome

What does Bruck Syndrome do?

We relieve the needs of individuals and families affected by Bruck Syndrome across the UK. We provide friendship and communication to reduce isolation , raise public awareness , and educate the medical profession. We also encourage research into treatments and disseminate findings to protect health and offer reassurance to those diagnosed and their carers.

When was Bruck Syndrome registered as a charity?

Bruck Syndrome was registered with the Charity Commission for England and Wales on 4 February 2026 as charity number 1216729.

Who runs Bruck Syndrome?

Bruck Syndrome is governed by a board of 4 trustees. The chair of trustees is Mahdi Koutizadeh. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Bruck Syndrome operate?

Bruck Syndrome operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Bruck Syndrome a registered charity?

Yes — Bruck Syndrome is a registered charity in England and Wales, charity number 1216729.

Details

Contact (address, email, phone)
Registration Date
4 February 2026
Status
Registered

Registry Information

Organisation Number
5271714
Charity Number
1216729

Trustees

Mahdi Koutizadeh Chair
Farzad Kootyzadeh
Hadis Sharifian
Zahra Koutizadeh

Data & trust

Register data refreshed
2 November 2026
Report a data issue