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cambridge rare disease network

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Activities & Mission

CamRARE build networks to improve outcomes for people affected by rare diseases. Regionally we support affected families through community activities. We provide a platform to showcase rare disease research, technologies, treatments and care through events like RAREsummit & RAREfest. We hold a Companies Forum to educate and exchange knowledge on rare disease. We undertake and support research.

Fundraising

See where Cambridge Rare Disease Network is active and find local fundraising opportunities.

Financial Information

Latest Income
£181,873
Latest Expenditure
£231,715

Financial Efficiency

Overall Efficiency 127.4%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 127.4%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£181,873£231,7150 / 20
2023£223,867£191,8450 / 20
2022£141,001£123,3090 / 20
2021£163,501£103,2100 / 20
2020£163,000£164,0000 / 20

Staff column shows: Employees / Volunteers

Details

Address
B C S
5 Station Court
Station Road
Great Shelford
CAMBRIDGE
CB22 5NE
Registration Date
5 April 2016
Status
Registered

Registry Information

Organisation Number
5070132
Charity Number
1166365

Trustees

Susan Berry
Emma Green
Loretta MacInnes
Dr Catherine O'Sullivan
Ruth Diazaraque
Billy Michael Lucas

Also Known As

  • CRDN
  • CamRARE