Cambridge Rare Disease Network
Also known as: Crdn, Camrare
CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.
Activities & Mission
CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £142,781 | £192,585 | 0 / 24 | |||
| 2024 | £181,873 | £231,715 | 0 / 20 | |||
| 2023 | £223,867 | £191,845 | 0 / 20 | |||
| 2022 | £141,001 | £123,309 | 0 / 20 | |||
| 2021 | £163,501 | £103,210 | 0 / 20 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Cambridge Rare Disease Network
What does Cambridge Rare Disease Network do?
CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.
How much income did Cambridge Rare Disease Network report in 2025?
Cambridge Rare Disease Network reported total income of £143k and reported expenditure of £193k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Cambridge Rare Disease Network registered as a charity?
Cambridge Rare Disease Network was registered with the Charity Commission for England and Wales on 5 April 2016 as charity number 1166365. It has been registered for 10 years.
Who runs Cambridge Rare Disease Network?
Cambridge Rare Disease Network is governed by a board of 7 trustees. The chair of trustees is Emma Green. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Cambridge Rare Disease Network operate?
Cambridge Rare Disease Network operates in England And Wales, as recorded in its Charity Commission filing.
Is Cambridge Rare Disease Network a registered charity?
Yes — Cambridge Rare Disease Network is a registered charity in England and Wales, charity number 1166365.
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Registry Information
Trustees
Also Known As
- Crdn
- Camrare
Data & trust
- Register data refreshed
- 13 October 2026
- Methodology
- How metrics are calculated