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cambridge rare disease network

The charity supports children and young people, people with disabilities, other charities or voluntary bodies, and the general public. Cambridge Rare Disease Network is a registered charity whose purpose is education and training. It delivers its work by providing services. The charity is based in Cambridge and operates in England And Wales.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

CamRARE build networks to improve outcomes for people affected by rare diseases. Regionally we support affected families through community activities. We provide a platform to showcase rare disease research, technologies, treatments and care through events like RAREsummit & RAREfest. We hold a Companies Forum to educate and exchange knowledge on rare disease. We undertake and support research.

Fundraising

See where Cambridge Rare Disease Network is active and find local fundraising opportunities.

Financial Information

Latest Income
£181,873
Latest Expenditure
£231,715

Financial Efficiency

Overall Efficiency 127.4%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 127.4%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£181,873£231,7150 / 20
2023£223,867£191,8450 / 20
2022£141,001£123,3090 / 20
2021£163,501£103,2100 / 20
2020£163,000£164,0000 / 20

Staff column shows: Employees / Volunteers