Cure Dhdds
The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease.
Activities & Mission
The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease.
Grants
Cure Dhdds is a grant-making charity: making grants is its main activity.
- Total spending (2025)
- £69,071
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, elderly people and people with disabilities
- What it supports
- the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £131,495 | £69,071 | 0 / 130 | |||
| 2024 | £236,221 | £76,983 | 0 / 125 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Cure Dhdds
What does Cure Dhdds do?
The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease.
How much income did Cure Dhdds report in 2025?
Cure Dhdds reported total income of £131k and reported expenditure of £69k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Cure Dhdds registered as a charity?
Cure Dhdds was registered with the Charity Commission for England and Wales on 6 April 2023 as charity number 1202643. It has been registered for 3 years.
Who runs Cure Dhdds?
Cure Dhdds is governed by a board of 6 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Cure Dhdds operate?
Cure Dhdds operates in England And Wales, as recorded in its Charity Commission filing.
Is Cure Dhdds a registered charity?
Yes — Cure Dhdds is a registered charity in England and Wales, charity number 1202643.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated