Cure Usher Syndrome
Also known as: Cure, Cureusher, Cure Usher
Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss.
Activities & Mission
Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss.
Grants
Cure Usher Syndrome is a grant-making charity: making grants is its main activity.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £174,605
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, elderly people, people with disabilities, other defined groups and the general public
- What it supports
- general charitable purposes, the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £247,040 | £174,605 | 0 / 10 | |||
| 2024 | £144,886 | £158,474 | 0 / 11 | |||
| 2023 | £158,361 | £63,036 | 0 / 0 | |||
| 2022 | £41,782 | £49,420 | 0 / 0 | |||
| 2021 | £6,625 | £7,461 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Cure Usher Syndrome
What does Cure Usher Syndrome do?
Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss.
How much income did Cure Usher Syndrome report in 2025?
Cure Usher Syndrome reported total income of £247k and reported expenditure of £175k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Cure Usher Syndrome registered as a charity?
Cure Usher Syndrome was registered with the Charity Commission for England and Wales on 20 December 2018 as charity number 1181293. It has been registered for 8 years.
Who runs Cure Usher Syndrome?
Cure Usher Syndrome is governed by a board of 6 trustees. The chair of trustees is Christopher Rowe. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Cure Usher Syndrome operate?
Cure Usher Syndrome operates in England And Wales, as recorded in its Charity Commission filing.
Is Cure Usher Syndrome a registered charity?
Yes — Cure Usher Syndrome is a registered charity in England and Wales, charity number 1181293.
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Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
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Registry Information
Trustees
Also governs 2 other charities
Also Known As
- Cure
- Cureusher
- Cure Usher
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated