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Cystic Fibrosis Trust

The Cystic Fibrosis Trust works to improve and transform the lives of people with cystic fibrosis by investing in research and its application to patients, driving up standards of clinical care in the NHS, providing information, advice and support for people with cystic fibrosis and their families, campaigning and influencing policy and raising awareness in the media and the general public.

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Activities & Mission

The Cystic Fibrosis Trust works to improve and transform the lives of people with cystic fibrosis by investing in research and its application to patients, driving up standards of clinical care in the NHS, providing information, advice and support for people with cystic fibrosis and their families, campaigning and influencing policy and raising awareness in the media and the general public.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£12,014,000
Latest Expenditure
£13,832,000

Financial Efficiency

Program Ratio 91.5%
% of income going directly to charitable activities

Higher than 41% of UK Beneficiary group charities with income over £10M (sample: 685). How is this calculated?

Overall Efficiency 79.4%
% of expenditure going to programs (vs overhead)

Higher than 16% of UK Beneficiary group charities with income over £10M. How is this calculated?

Administrative Ratio 24.8%
Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 12% of UK Beneficiary group charities with income over £10M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £10,032,000
Charitable Activities £0
Other Trading £1,257,000
Investments £655,000
Other Income £70,000

Expenditure Categories

Charitable Expenditure £10,987,000
Raising Funds £2,845,000
Governance £580,000
Grants to Institutions £2,885,000
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£12,014,000
£13,832,000£10,987,000£9,562,000£8,106,000133 / 162
2024
£14,666,000
£15,094,000£12,020,000£11,340,000£9,840,000134 / 200
2023
£14,666,000
£12,772,000£9,450,000£11,357,000£9,711,000121 / 183
2022
£15,681,000
£15,968,000£11,784,000£9,671,000£8,354,000110 / 183
2021
£14,386,000
£13,905,000£10,184,000£9,516,000£8,279,000122 / 200

Staff column shows: Employees / Volunteers

Frequently asked questions about Cystic Fibrosis Trust

What does Cystic Fibrosis Trust do?

The Cystic Fibrosis Trust works to improve and transform the lives of people with cystic fibrosis by investing in research and its application to patients, driving up standards of clinical care in the NHS, providing information, advice and support for people with cystic fibrosis and their families, campaigning and influencing policy and raising awareness in the media and the general public.

How much income did Cystic Fibrosis Trust report in 2025?

Cystic Fibrosis Trust reported total income of £12.01m and reported expenditure of £13.83m for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

How efficient is Cystic Fibrosis Trust?

Cystic Fibrosis Trust has a program ratio of 91.5%, meaning that share of its income goes directly to charitable activities. This is higher than 41% of UK Beneficiary group charities with income over £10M (sample of 685 charities). See our methodology for how this is calculated.

When was Cystic Fibrosis Trust registered as a charity?

Cystic Fibrosis Trust was registered with the Charity Commission for England and Wales on 21 January 2000 as charity number 1079049. It has been registered for 26 years.

Who runs Cystic Fibrosis Trust?

Cystic Fibrosis Trust is governed by a board of 12 trustees. The chair of trustees is Richard Hunt CBE. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Cystic Fibrosis Trust operate?

Cystic Fibrosis Trust operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Cystic Fibrosis Trust a registered charity?

Yes — Cystic Fibrosis Trust is a registered charity in England and Wales, charity number 1079049.

Details

Address
Cystic Fibrosis Trust
33 Creechurch Lane
LONDON
EC3A 5EB
Registration Date
21 January 2000
Status
Registered

Registry Information

Organisation Number
3967367
Charity Number
1079049

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Trustees

Richard Hunt CBE Chair
Also governs 2 other charities
Anthony Hunter
Daniel Beever
Dr Maya Desai
Jane Wainwright
Joanna Barrett
Martin Walshaw
Michelle Shore
Neil Priscott
Sean Collins
Sonya Trivedy
Sophie Pierce

Data & trust

Register data refreshed
14 May 2026
Report a data issue