Cystinosis Foundation Of The UK
Also known as: Cystinosis Foundation - UK and Eire, Cystinosis Support Foundation of the UK and Eire
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
Activities & Mission
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £34,431 | £19,238 | 0 / 0 | |||
| 2024 | £21,084 | £16,033 | 0 / 0 | |||
| 2023 | £45,281 | £115,891 | 0 / 0 | |||
| 2022 | £21,443 | £5,664 | 0 / 6 | |||
| 2021 | £20,278 | £10,844 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Cystinosis Foundation Of The UK
What does Cystinosis Foundation Of The UK do?
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
How much income did Cystinosis Foundation Of The UK report in 2025?
Cystinosis Foundation Of The UK reported total income of £34k and reported expenditure of £19k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Cystinosis Foundation Of The UK registered as a charity?
Cystinosis Foundation Of The UK was registered with the Charity Commission for England and Wales on 26 March 1999 as charity number 1074885. It has been registered for 27 years.
Who runs Cystinosis Foundation Of The UK?
Cystinosis Foundation Of The UK is governed by a board of 9 trustees. The chair of trustees is William George Newman. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Cystinosis Foundation Of The UK operate?
Cystinosis Foundation Of The UK operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Cystinosis Foundation Of The UK a registered charity?
Yes — Cystinosis Foundation Of The UK is a registered charity in England and Wales, charity number 1074885.
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Registry Information
Trustees
Also governs 1 other charity
Also Known As
- Cystinosis Foundation - UK and Eire
- Cystinosis Support Foundation of the UK and Eire
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated