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cystinosis foundation of the uk

The charity supports children and young people, people with disabilities, and other defined groups. Cystinosis Foundation Of The UK is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by providing advocacy, advice, or information. The charity is based in Birmingham and operates in Scotland, Northern Ireland, and England And Wales.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general

Fundraising

See where Cystinosis Foundation Of The UK is active and find local fundraising opportunities.

Financial Information

Latest Income
£21,084
Latest Expenditure
£16,033

Financial Efficiency

Overall Efficiency 76.0%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 76.0%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£21,084£16,0330 / 0
2023£45,281£115,8910 / 0
2022£21,443£5,6640 / 6
2021£20,278£10,8440 / 0
2020£29,117£21,6070 / 1

Staff column shows: Employees / Volunteers