cystinosis foundation of the uk
Activities & Mission
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
Fundraising
See where Cystinosis Foundation Of The UK is active and find local fundraising opportunities.
Country
Region
Financial Information
Latest Income
£21,084
Latest Expenditure
£16,033
Financial Efficiency
Overall Efficiency 76.0%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 76.0%
Expenditure as % of income
Financial Trend
Annual Returns
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £21,084 | £16,033 | 0 / 0 | |||
| 2023 | £45,281 | £115,891 | 0 / 0 | |||
| 2022 | £21,443 | £5,664 | 0 / 6 | |||
| 2021 | £20,278 | £10,844 | 0 / 0 | |||
| 2020 | £29,117 | £21,607 | 0 / 1 |
Staff column shows: Employees / Volunteers
Details
Address
Cystinosis Foundation UK
Unit 81304
PO Box 15113
Birmingham
B2 2NJ
Unit 81304
PO Box 15113
Birmingham
B2 2NJ
Email
advice@cystinosis.org.ukWebsite
www.cystinosis.org.ukRegistration Date
26 March 1999
Status
Registered
Registry Information
Organisation Number
3958394
Charity Number
1074885
Trustees
David Nigel Benford
Thomas Ian Kenning
William George Newman
Karthikeyan Ekambaram
Alexandra Innes Hutchison
Thomas Stuart-Black Kelly
Kirsty Avril Biss
Sectors & Classifications
Also Known As
- CYSTINOSIS FOUNDATION - UK AND EIRE
- CYSTINOSIS SUPPORT FOUNDATION OF THE UK AND EIRE