Dancing Eye Syndrome Support Trust
The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.
Activities & Mission
The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £15,398 | £27,983 | 0 / 8 | |||
| 2024 | £10,161 | £15,059 | 0 / 8 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Dancing Eye Syndrome Support Trust
What does Dancing Eye Syndrome Support Trust do?
The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.
How much income did Dancing Eye Syndrome Support Trust report in 2025?
Dancing Eye Syndrome Support Trust reported total income of £15k and reported expenditure of £28k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Dancing Eye Syndrome Support Trust registered as a charity?
Dancing Eye Syndrome Support Trust was registered with the Charity Commission for England and Wales on 16 January 1997 as charity number 1060181. It has been registered for 29 years.
Who runs Dancing Eye Syndrome Support Trust?
Dancing Eye Syndrome Support Trust is governed by a board of 10 trustees. The chair of trustees is Joanne Sarah Brazier. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Dancing Eye Syndrome Support Trust operate?
Dancing Eye Syndrome Support Trust operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Dancing Eye Syndrome Support Trust a registered charity?
Yes — Dancing Eye Syndrome Support Trust is a registered charity in England and Wales, charity number 1060181.
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Registry Information
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Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated