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Debra

Promote research for the benefit of the public into the cause, nature, treatment and cure of Epidermolysis Bullosa and other related medical conditions.To relieve physical and mental illness and distress among persons suffering from EB by the provision of practical advice, guidance and support for the persons responsible for their welfare

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Activities & Mission

Promote research for the benefit of the public into the cause, nature, treatment and cure of Epidermolysis Bullosa and other related medical conditions.To relieve physical and mental illness and distress among persons suffering from EB by the provision of practical advice, guidance and support for the persons responsible for their welfare

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£18,176,154
Latest Expenditure
£18,557,148

Financial Efficiency

Program Ratio 21.1%
% of income going directly to charitable activities
Overall Efficiency 20.7%
% of expenditure going to programs (vs overhead)
Administrative Ratio 79.4%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £5,701,451
Charitable Activities £31,247
Other Trading £12,343,028
Investments £43,478
Other Income £56,950

Expenditure Categories

Charitable Expenditure £3,843,375
Raising Funds £14,713,773
Governance £24,850
Grants to Institutions £534,084
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£18,176,154
£18,557,148£3,843,375£3,206,258£1,000,000362 / 1200
2023
£18,228,440
£18,891,360£4,396,704£3,587,252£3,166,584368 / 1200
2022
£16,420,725
£15,968,928£2,640,327£4,250,172£4,250,172362 / 1100
2021
£13,317,401
£12,500,016£1,885,198£3,798,375£4,050,325360 / 840
2020
£11,412,897
£13,783,428£2,847,766£2,980,990£2,980,990376 / 800

Staff column shows: Employees / Volunteers

Frequently asked questions about Debra

What does Debra do?

Promote research for the benefit of the public into the cause, nature, treatment and cure of Epidermolysis Bullosa and other related medical conditions.To relieve physical and mental illness and distress among persons suffering from EB by the provision of practical advice, guidance and support for the persons responsible for their welfare

How much income did Debra report in 2024?

Debra reported total income of £18.18m and reported expenditure of £18.56m for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was Debra registered as a charity?

Debra was registered with the Charity Commission for England and Wales on 9 February 2001 as charity number 1084958. It has been registered for 25 years.

Who runs Debra?

Debra is governed by a board of 13 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Debra operate?

Debra operates in England And Wales, as recorded in its Charity Commission filing.

Is Debra a registered charity?

Yes — Debra is a registered charity in England and Wales, charity number 1084958.

Details

Address
D E B R A
The Capitol Building
Oldbury
BRACKNELL
RG12 8FZ
Registration Date
9 February 2001
Status
Registered

Registry Information

Organisation Number
3978601
Charity Number
1084958

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Trustees

Carly Fields
Douglas MacDonald
Gareth Jones
Jaspreet Singh Jhaj
Katy Hinchcliffe
Kevin Patrick Kealy
Laura Briggs
MICHAEL PARRY THOMAS
Rev David Bendor-Samuel
Also governs 2 other charities
Sandrine Germaine Miriam Letellier
Simon Colin Talbot
Simone Bunting
Zoe Louise Bailey

Data & trust

Register data refreshed
30 July 2026
Report a data issue