Desmoid Aid UK
Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
Activities & Mission
Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
Grants
Desmoid Aid UK is a grant-making charity: making grants is its main activity.
- Gives grants to
- individuals
- Total spending (2025)
- £963
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- the general public
- What it supports
- general charitable purposes
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £8,134 | £963 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Desmoid Aid UK
What does Desmoid Aid UK do?
Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
How much income did Desmoid Aid UK report in 2025?
Desmoid Aid UK reported total income of £8k and reported expenditure of £963.00 for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Desmoid Aid UK registered as a charity?
Desmoid Aid UK was registered with the Charity Commission for England and Wales on 5 March 2024 as charity number 1207309. It has been registered for 2 years.
Who runs Desmoid Aid UK?
Desmoid Aid UK is governed by a board of 4 trustees. The chair of trustees is Jacqui Black. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Desmoid Aid UK operate?
Desmoid Aid UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Desmoid Aid UK a registered charity?
Yes — Desmoid Aid UK is a registered charity in England and Wales, charity number 1207309.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated