dravet syndrome uk

The charity supports children and young people and people with disabilities. Dravet Syndrome UK is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by making grants to individuals. The charity is based in Chesterfield and operates in England, Scotland, and Northern Ireland.

This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Support for children and adults suffering from Dravet syndrome and their families

Fundraising

See where Dravet Syndrome UK is active and find local fundraising opportunities.

Region

England

Country

Scotland Northern Ireland

Financial Information

Latest Income

£561,982

Latest Expenditure

£796,545

Financial Efficiency

Program Ratio 129.7%

% of income going directly to charitable activities

Overall Efficiency 91.5%

% of expenditure going to programs (vs overhead)

Administrative Ratio 16.8%

Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £544,486

Charitable Activities £0

Other Trading £5,755

Investments £2,303

Other Income £9,438

Expenditure Categories

Charitable Expenditure £728,852

Raising Funds £67,693

Governance £65,943

Grants to Institutions £0

Other Expenditure £0

Financial Trend

Annual Returns

Financial Year	Income	Expenditure	Charitable Spending	Net Assets	Reserves	Staff
2025	£561,982	£796,545	£728,852	£306,878	£305,878	7 / 14
2024	£487,892	£436,435				0 / 5
2023	£456,074	£371,118				0 / 6
2022	£342,790	£364,519				0 / 12
2021	£345,071	£305,812				0 / 12