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dravet syndrome uk

The charity supports children and young people and people with disabilities. Dravet Syndrome UK is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by making grants to individuals. The charity is based in Chesterfield and operates in England, Scotland, and Northern Ireland.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Support for children and adults suffering from Dravet syndrome and their families

Fundraising

See where Dravet Syndrome UK is active and find local fundraising opportunities.

Financial Information

Latest Income
£561,982
Latest Expenditure
£796,545

Financial Efficiency

Program Ratio 129.7%
% of income going directly to charitable activities
Overall Efficiency 91.5%
% of expenditure going to programs (vs overhead)
Administrative Ratio 16.8%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £544,486
Charitable Activities £0
Other Trading £5,755
Investments £2,303
Other Income £9,438

Expenditure Categories

Charitable Expenditure £728,852
Raising Funds £67,693
Governance £65,943
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025£561,982£796,545£728,852£306,878£305,8787 / 14
2024£487,892£436,4350 / 5
2023£456,074£371,1180 / 6
2022£342,790£364,5190 / 12
2021£345,071£305,8120 / 12

Staff column shows: Employees / Volunteers

Details

Address
PO Box 756
CHESTERFIELD
S43 9EB
Registration Date
26 February 2009
Status
Registered

Registry Information

Organisation Number
4044034
Charity Number
1128289

Trustees

Galia Wilson-John
John David Rees Lloyd
Neil Williamson
Alex Williams
Stephanie Smith

Sectors & Classifications

Also Known As

  • THE IDEA LEAGUE UK