Dravet Syndrome UK
Also known as: The Idea League UK
Support for children and adults suffering from Dravet syndrome and their families
Activities & Mission
Support for children and adults suffering from Dravet syndrome and their families
Grants
Dravet Syndrome UK makes grants as part of its work.
- Gives grants to
- individuals
- Total spending (2026)
- £735,372
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people and people with disabilities
- What it supports
- the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2026.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2026 | £640,286 | £735,372 | £681,678 | £211,792 | £207,460 | 9 / 10 |
| 2025 | £561,982 | £796,545 | £728,852 | £306,878 | £305,878 | 7 / 14 |
| 2024 | £487,892 | £436,435 | 0 / 5 | |||
| 2023 | £456,074 | £371,118 | 0 / 6 | |||
| 2022 | £342,790 | £364,519 | 0 / 12 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Dravet Syndrome UK
What does Dravet Syndrome UK do?
Support for children and adults suffering from Dravet syndrome and their families
How much income did Dravet Syndrome UK report in 2026?
Dravet Syndrome UK reported total income of £640k and reported expenditure of £735k for the financial year ending 2026, based on the most recent annual return filed with the Charity Commission.
When was Dravet Syndrome UK registered as a charity?
Dravet Syndrome UK was registered with the Charity Commission for England and Wales on 26 February 2009 as charity number 1128289. It has been registered for 17 years.
Who runs Dravet Syndrome UK?
Dravet Syndrome UK is governed by a board of 5 trustees. The chair of trustees is Galia Wilson-John. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Dravet Syndrome UK operate?
Dravet Syndrome UK operates across 3 areas: Northern Ireland, Scotland and England.
Is Dravet Syndrome UK a registered charity?
Yes — Dravet Syndrome UK is a registered charity in England and Wales, charity number 1128289.
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Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
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Registry Information
Trustees
Also Known As
- The Idea League UK
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated