Ectodermal Dysplasia Society
Also known as: Eds
The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.
Activities & Mission
The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £107,407 | £115,098 | 0 / 5 | |||
| 2024 | £77,208 | £72,613 | 0 / 10 | |||
| 2023 | £62,771 | £71,229 | 0 / 10 | |||
| 2022 | £71,573 | £50,984 | 0 / 0 | |||
| 2021 | £34,163 | £43,857 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Ectodermal Dysplasia Society
What does Ectodermal Dysplasia Society do?
The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.
How much income did Ectodermal Dysplasia Society report in 2025?
Ectodermal Dysplasia Society reported total income of £107k and reported expenditure of £115k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Ectodermal Dysplasia Society registered as a charity?
Ectodermal Dysplasia Society was registered with the Charity Commission for England and Wales on 31 October 2001 as charity number 1089135. It has been registered for 25 years.
Who runs Ectodermal Dysplasia Society?
Ectodermal Dysplasia Society is governed by a board of 13 trustees. The chair of trustees is PAUL COLLACOTT. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Ectodermal Dysplasia Society operate?
Ectodermal Dysplasia Society operates in England And Wales, as recorded in its Charity Commission filing.
Is Ectodermal Dysplasia Society a registered charity?
Yes — Ectodermal Dysplasia Society is a registered charity in England and Wales, charity number 1089135.
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Registry Information
Trustees
Also Known As
- Eds
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated